Having a book to read is never a problem and I have the bookshelves to prove it. My biggest dilemma is in deciding which book to read. I immediately head to the library when I get stuck choosing from my ‘shelves of best intentions’. There, I feel pressured (through shame) to walk out of there ...
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Sunday ,July 25, 2010
Autoimmune Diseases & Syndromes, Books, Chronic Illness, Diagnosis, Health, Labs & Testing, Lupus, MLWT, Oregon, Personal Stories, Relationship-focused, Social Support, Treatment Approaches and Perspectives, Washington
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For this next edition of Patients For a Moment (July 28th), hosted by Queen of Optimism on her blog, she presents the question:
"What is the nicest thing (or things) anyone has done for you since you became ill?"
I believe the nicest things that I’ve received from people since my health challenges hit me have been to ...
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Wednesday ,July 21, 2010
Chronic Illness, Events, Internet, Lupus, MLWT, Oregon, Personal Stories, Social Support, Treatment Approaches and Perspectives, Washington
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I'm working down my catch up list of posts and have reached this trailer for a new movie that addresses living with illness (lupus) and learning to love right along with it.
Check out Love Simple
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Friday ,July 16, 2010
Advocacy, Autoimmune Diseases & Syndromes, Challenge and Opportunity, Chronic Illness, Family, Friends, Lupus, Men's support, Oregon, Resources, Social Support, Washington
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On Tuesday night, July 6th, I watched the PBS NewsHour (on OPB Channel 10 ) segment (reported by correspondent Betty Ann Bowser and funded by Robert Wood Johnson Foundation ) about the new health coverage option for high-risk patients with preexisting conditions . Living without any health coverage myself, I was eager to learn a little ...
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Thursday ,July 8, 2010
Advocacy, Chronic Illness, Disability, Fibromyalgia, Health, Lupus, Oregon, Personal Stories, Resources, Scleroderma, Self-Care, Washington
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I will apparently go to great lengths to avoid exercising on purpose. This Wednesday, July 7th, was to be a Target Practice gathering at Cooper Mountain. It has to be postponed, but I still encourage you to take some time and walk their trails. Although, the heat is on its way, too, so I may ...
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Monday ,July 5, 2010
Behaviors and Patterns, Health, MLWT, Oregon, Self-Care, Social Support, Sports & Fitness, Strategies, Washington
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I received a note from the Oregon Chapter of the Scleroderma Foundation that they will once again be on our own KATU Channel 2 AM Northwest morning show! This Thursday,July 1st, AM Northwest will generously offer program time for the chapter's scleroderma awareness team to introduce information about living with scleroderma and to present the upcoming "Stepping Out To Cure Scleroderma" benefit ...
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Tuesday ,June 29, 2010
Advocacy, Community, Events, Health, Local Resources, Oregon, Scleroderma, Social Support, Washington
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Today, BloggersUnite is hosting an online event entitled People First: Empowering People With Disabilities .
I’ve been having unusually prominent symptoms from my lupus. I always anticipate a little trouble once the sunshine finally arrives here in Oregon, but these are symptoms that I haven’t had or remember having for quite a few years. Naturally, my ...
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Thursday ,June 24, 2010
Advocacy, Books, Chronic Illness, Community, Disability, Events, Internet, Local Resources, Lupus, Oregon, Resources, Social Support, Washington, Work and Career
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Last month, I went on a hike through Tryon State Park with my new friend, MLWT Guest Blogger and Acupuncturist, Becca Seitz . Despite my constant and intense headaches weeks prior, I felt the need to get outside and move. Preferably with someone to talk to and in beautiful surroundings, which Becca and Tryon Creek ...
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Friday ,June 11, 2010
Arthritis Information, Autoimmune Diseases & Syndromes, Chinese Medicine/Acupuncture, Chronic Illness, Fibromyalgia, Friends, Guest Blogger, Lupus, Oregon, Outdoor Fun, Stress Mgmt, Treatment Approaches and Perspectives, Washington
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Monday was a day set aside to reflect on personal sacrifice, dedication to values, making commitments to those we share our lives with and things to believe in. It was a day when we said “Thank You” to all those who have, and continue to be, on the frontlines for us all.
As I prepped my ...
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Tuesday ,June 1, 2010
Autoimmune Diseases & Syndromes, Challenge and Opportunity, Chronic Illness, Coping, Lupus, Oregon, Personal Stories, Social Support, Washington
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My good friend, and fellow blogging buddy, Leslie, who authors Getting Closer To Myself recently posted about a topic that is at the core of my work here in our Pacific Northwest lupus and chronic illness communities. It is the topic on the love-hate relationship with participation in a support group when living with illness. ...
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Tuesday ,May 18, 2010
Autoimmune Diseases & Syndromes, Chronic Illness, Community, Coping, Education and Skill Building, Local Resources, MLWT, Oregon, Portland Metro, Research, Self-Care, Social Support, Strategies, Support Groups, Treatment Approaches and Perspectives, Washington
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