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Tag Archives: Social Support

New Directions for MLWT

2011/09/20 Chronic Illness, MLWT, Oregon, Social Support, Washington No comments

When this MLWT network began, my role was to act as a collector of stories. Building on the research I conducted on lupus peer-led support groups here in Oregon, I continued to interview,......

Elevator Speech

2011/08/12 Chronic Illness, Coping, Social Support, Stress Mgmt One comment

For many of us living with chronic health challenges, we spend a lot of time in elevators. On good days, we try the stairs. That time spent in elevators, however, can reflect our lives ......

The Sound of Silence

2011/08/06 Friends, Lupus, Oregon, Relationship-focused, Washington 4 comments

Sometimes, many months or years pass before I get around to checking in on some of my friends. One friend, in particular, would take what seemed to be forever to get back to my emails or phone c......

Introducing a new network with a youthful kick

2011/07/16 Chronic Illness, Communication, Coping, Lifestyle, Networking, Oregon, Personal Stories, Resources, Washington No comments

I am always on the lookout for new options for the younger set living with chronic illnesses. So much of the information out there on the internet is geared towards assuming people living with ......

May 7th~ World Ankylosing Spondylitis Awareness Day

2011/05/07 Advocacy, Ankylosing Spondylitis, Arthritis Information, Coping, Education and Skill Building, Events, Internet, Oregon, Pain management, Personal Stories, Resources, Social Support, Vancouver, Washington No comments

I have had the pleasure of meeting and collaborating with some amazing people, including the crew at the Spondylitis Association of America. Although there isn’t an official chapter of the Spon......

Holding onto the little things to fuel our tomorrows

2010/12/27 Autoimmune Diseases & Syndromes, Coping, Holidays & Socials, Lupus, MLWT, Oregon, Personal Stories, Social Support, Stress Mgmt, Washington No comments

As I begin to close my 2010 and prepare for a new one, I look back over the tumultuous last three months with a heavy heart. In fact, I went through pictures from holiday seasons past this year......

Moving away from stuffing feelings and more towards stocking stuffers

2010/12/06 Chronic Illness, Coping, Fibromyalgia, Holidays & Socials, Internet, Lupus, Oregon, Personal Stories, Self-Care, Shopping, Social Support, Treatment Approaches and Perspectives, Washington No comments

Every now and then, I will come across something that is so simple yet so powerful that it astounds me. It is easy to get carried away and overwhelmed with the holiday season. It seems like e......

Season of “Family”

2010/11/24 Chronic Illness, Creativity, Holidays & Socials, Internet, Lupus, Oregon, Personal Stories, Relationship-focused, Social Support, Washington No comments

The month of November officially begins, what I call, my “Season of Family.” Besides the usual holiday hooplah and the mounting stress that accompanies it all, this is the time when ......

Integrative Care and Autoimmune Disease~ A Community presentation

2010/11/03 Chronic Illness, Community, Education and Skill Building, Local Resources, Oregon, Portland Metro, Scleroderma, Treatment Approaches and Perspectives No comments

Here’s a note from the Oregon Chapter of the Scleroderma Foundation regarding their upcoming Portland-area support group meeting on November 13th: “Guest speaker at the next Scleroderma Support ......

Incognito No More

2010/09/06 Advocacy, Announcements, Chronic Illness, Creativity, Events, Humor, Lifestyle, Lupus, MLWT, Oregon, Personal Stories, Social Support, Washington One comment

For my contributions for Invisible Illness Awareness Week this year, Leslie at Getting Closer To Myself and I are collaborating on a fun little project with our goal being to make the invisibl......

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