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How do I see my Illness?

2011/12/21 Ankylosing Spondylitis, Arthritis Information, Autoimmune Diseases & Syndromes, Chronic Illness, Creativity, Fibromyalgia, Health, Holidays & Socials, Internet, Lupus, MLWT, Oregon, Pain management, Personal Stories, Scleroderma, Self-Care, Social Support, Stress Mgmt, Vancouver No comments
I missed the deadline for the PFAM this month, but Leslie has graciously allowed us to submit late and here is mine. I offer both in-person and online Discovery Sessions that focus on wellness –......

Embracing living on the edge~ both in health and humor

2011/05/30 Books, Chronic Illness, Coping, Humor, Lupus, Oregon, Personal Stories, Problem-focused, Self-Care, Social Support, Washington One comment
“You grow up the day you have your first real laugh at yourself.” – Ethel Barrymore   In April, the MLWT book discussion group on Shelfari.com hosted Carla Ulbrich’s  book  How Can You NOT Laugh......

May and Lupus back in the spotlight

2011/05/01 Advocacy, Announcements, Autoimmune Diseases & Syndromes, Chronic Illness, Communication, Education and Skill Building, Events, Fibromyalgia, Lupus, MLWT, Oregon, Resources, Social Support, Treatment Approaches and Perspectives, Washington No comments
Here we are again~ National Lupus Awareness Month.  International Lupus Awareness Day is May 10th.  In Oregon, SB348 (Senate Bill 348 designates May of each year as Lupus Awareness Month and ma......

Sound the trumpets, but heed the call

2011/03/12 Advocacy, Health, Lupus, Oregon, Treatment Approaches and Perspectives, Treatments and Drug Trials, Washington One comment
This was a big week for me and I intend to write about all that is going on in the next few days.  I want to begin with one of those “big” items, though, that has caused some mixed feelings and ......

Applying the brakes and taking back the wheel

2011/02/19 Challenge and Opportunity, Coping, Health, Lifestyle, Lupus, Oregon, Self-Care, Washington No comments
  If you had asked me in January whether I realized how much my 2011 goal of  catching up would bring on a domino effect leaving me buried still into February, I would’ve scoffed…and you ......

Integrative Care and Autoimmune Disease~ A Community presentation

2010/11/03 Chronic Illness, Community, Education and Skill Building, Local Resources, Oregon, Portland Metro, Scleroderma, Treatment Approaches and Perspectives No comments
Here’s a note from the Oregon Chapter of the Scleroderma Foundation regarding their upcoming Portland-area support group meeting on November 13th: “Guest speaker at the next Scleroderma Support ......

Incognito No More

2010/09/06 Advocacy, Announcements, Chronic Illness, Creativity, Events, Humor, Lifestyle, Lupus, MLWT, Oregon, Personal Stories, Social Support, Washington One comment
For my contributions for Invisible Illness Awareness Week  this year, Leslie  at Getting Closer To Myself and I are collaborating on a fun little project with our goal being to make the invisibl......

A Penny For Your Thoughts

2010/07/08 Advocacy, Chronic Illness, Disability, Fibromyalgia, Health, Lupus, Oregon, Personal Stories, Resources, Scleroderma, Self-Care, Washington No comments
On Tuesday night, July 6th, I watched the PBS NewsHour (on OPB Channel 10 ) segment (reported by correspondent Betty Ann Bowser and funded by  Robert Wood Johnson   Foundation ) about the new he......

People First!

2010/06/24 Advocacy, Books, Chronic Illness, Community, Disability, Events, Internet, Local Resources, Lupus, Oregon, Resources, Social Support, Washington, Work and Career No comments
Today, BloggersUnite is hosting an online event entitled People First: Empowering People With Disabilities . I’ve been having unusually prominent symptoms from my lupus.  I always anticipate a ......

Becoming a Tree Hugger

2010/06/11 Arthritis Information, Autoimmune Diseases & Syndromes, Chinese Medicine/Acupuncture, Chronic Illness, Fibromyalgia, Friends, Guest Blogger, Lupus, Oregon, Outdoor Fun, Stress Mgmt, Treatment Approaches and Perspectives, Washington No comments
  Last month, I went on a hike through Tryon State Park with my new friend, MLWT Guest Blogger and Acupuncturist, Becca Seitz .  Despite my constant and intense headaches weeks prior, I felt th......

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