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LFA’s Advocacy Day on Tuesday, March 16th

2010/03/14 Advocacy, Events, Lupus, Oregon, Personal Stories, Washington No comments

We’ve been asked by the National Lupus Foundation and our own Pacific Northwest LFA Chapter to post reminders about this annual awareness event. Both offer important and convenient way......

Not By the Hair of My “Chinny Chin Chin”

2010/02/26 Chronic Illness, Community, Guest Blogger, Health, Holistic, Local Resources, Oregon, Treatment Approaches and Perspectives, Washington No comments

I figured that this quote from the familiar children’s story of the “The Three Little Pigs” would be a nice segue into my post today, because it includes a chin reference, a big, bad wolf and lo......

To Be, or not to be,…

2010/02/22 Challenge and Opportunity, Chronic Illness, Identity, Lupus, Oregon, Personal Stories, Treatment Approaches and Perspectives, Washington One comment

I’ve found that my relationship to illness has become more of one that requires me to constantly acknowledge a relationship with illness. Realistically speaking, the days of being able to keep ......

Another Version of WWJD?

2010/02/10 Behaviors and Patterns, Challenge and Opportunity, Coping, Health, Lupus, Oregon, Self-Care, Washington One comment

As I contemplate this month’s focus on heart health or, more accurately, the demise of my own heart health, I can’t help but ask myself: What Would Jillian [Michaels] Do if she had lupus? This......

Why The Pecking Order?

2010/01/27 Advocacy, Local Resources, Lupus, MLWT, Oregon, Resources, Washington No comments

We live next to a water way and have more varieties of fowl than you would expect to be here in the suburbs. With the mild temps this winter and heading into spring, the size of our backyard f......

Lupus and men: Dr. Oz is making an office call soon~

2010/01/15 Coping, Diagnosis, Events, Local Resources, Lupus, Men, Men's support, Oregon, Self-Care, Television and Radio, Washington No comments

I received an email from Kathy Casey, Executive Director of the Lupus Foundation of America -Pacific NW Chapter letting me know about an event that I want to pass along to all of you: “Hello, We......

Focusing on the pieces helps me get to my big picture

2010/01/11 Challenge and Opportunity, Community, Education and Skill Building, Events, Fibromyalgia, Friends, Health, Lifestyle, Local Resources, Lupus, MLWT, Networking, Oregon, Outdoor Fun, Portland Metro, Resources, Self-Care, Social Support, Sports & Fitness, Targets, Washington No comments

It seemed like a good idea at the time. I picked out a beautiful 2000 piece puzzle of Neuschwanstein Castle in Germany for my mom this year for Christmas. It has been years since I did one and......