Invisible Chronic Illness | My Life Works Today!

Tag Archives: invisible chronic illness

Job Opening~ Full-Time health manager with strong experience…wait, that’s me!

2012/02/02 Autoimmune Diseases & Syndromes, Chronic Illness, Education and Skill Building, Personal Stories, Resources, Self-Care, Strategies No comments

Generally, I avoid using marketing materials to describe what I “do.” It feels to me like using brochures or shoving business cards down people’s throats somehow adds a ‘snake oil’ component th......

April Book for MLWT Discussion Group

2011/04/01 Books, Events, Friends, Humor, MLWT, Oregon, Personal Stories, Washington No comments

Just a quick note~ Today begins our April MLWT book group discussion on Shelfari.com and we are featuring Carla Ulbrich’s How Can You NOT Laugh At A Time Like This? . In fact, Carla has jo......

National Women’s History Month 2011

2011/03/06 Chronic Illness, Identity, Lupus, Oregon, Self-Care, Stress Mgmt, Washington No comments

When I put together my latest piece for The Lupus Magazine this month, I completely spaced the fact that March is the month for celebrating women. I was focused on the fact that it was my birth......

No matter where I go, there you are~

2010/09/14 Advocacy, Behaviors and Patterns, Chronic Illness, Communication, Events, Identity, Lupus, Oregon, Washington No comments

I have been followed around by lupus for over a decade now, but there are still times when I actually expect to be able to fly solo. In comparison to many people living with this disease, I am ......

Putting it out there

2010/09/12 Advocacy, Chronic Illness, Events, MLWT, Oregon, Social Support, Washington One comment

Today begins National Invisible Chronic Illness Awareness Week 2010. For the entire week, I will be posting mini-posts including photos that bring a little more visibility to how I view living ......

Giving Ourselves a Hand

2009/12/08 Challenge and Opportunity, Coping, Holidays & Socials, Lifestyle, Lupus, Oregon, Self-Care, Targets, Treatment Approaches and Perspectives, Washington No comments

This week is National Handwashing Week . I fall somewhere between “Extra precautions are a good idea” and “What’s all the hysteria really about?! ” when it comes to exposing my already-accelera......

Seeing is Being

2009/09/16 Advocacy, Challenge and Opportunity, Chronic Illness, Coping, Events, Internet, Lupus, MLWT, Oregon, Personal Stories, Social Support, Washington No comments

With this week being National Invisible Chronic Illness Awareness Week, there have been so many places to go and learn so much. Not just about living with a chronic illness, but about living&#......

National Invisible Chronic Illness Awareness Week 2009

2009/09/14 Advocacy, Announcements, Chronic Illness, Communication, Coping, Diagnosis, Events, Lupus, MLWT, Oregon, Personal Stories, Resources, Social Support, Treatment Approaches and Perspectives, Washington No comments

Here we go! Monday, September 14th is the beginning of National Invisible Chronic Illness Awareness Week 2009 and there will a lot of great people out there offering a great deal of informatio......