Helpful Links
We offer several links that have been recommended or are links that we use frequently ourselves. This list will be dynamic, so check back occasionally for updates and additions. You will also be able to find additional link suggestions on our bulletin boards contributed by fellow MLWT community members. The listings here are not ranked by preference nor do we endorse any particular program or service. We list these just for informational purposes and encourage you to visit link recommendations on other sites to get a larger pool to draw from.
MLWT Connections
You will also find us here~
- MySpace
- BlogCatalogue
- Ardent Celebrations: Musings of Lupus Survivors (Ning Community)
- LupusMCTD (Ning Community)
- WeAreLupus.org
- Shelfari.com
General Chronic Illness Resources
Here are some general links that offer advocacy and information~
- Partnership to Fight Chronic Disease
- Advocacy for Patients with Chronic Illness, Inc
- Living Well With Chronic Conditions Workshops (State of Oregon)
Oregon and SW Washington Resources
This is still in the growing stages – here are a few to get things started and feel free to contact us with more~
- Your Disability Rep
- Legacy Community Health Centers
- Tuality Health Education Center
- OHSU Center for Women’s Health
- LFA Pacific NW Chapter
- OHSU Fibromyalgia Information Foundation (Fibromyaglia Connections)
- Arthritis Foundation Oregon Branch Chapter
- Oregon Scleroderma Chapter
Specific Topics
These are some of the most common questions and topics that we hear most people
searching for or interested in~
- RxAssist
- Lab Tests Online
- Social Security Online
- Partnership For Prescription Assistance
- Together RX Access
- Rx Outreach
- Local retailers like Target, Walmart, Fred Meyers and Safeway offer $4 30-day supplies on generic prescriptions
Health Information, Foundations and Organizations
- Lupus Foundation of America (LFA)
- SLE Lupus Foundation
- LupusMCTD Foundation
- National Fibromyalgia Association
- FM/CFS/ME Resources
- CFIDS Association of America
- Web MD (Lupus Health Center)
- National Kidney Foundation
- Medline Plus (Women’s Health)
- The Skin Cancer Foundation
- Womens’ Health Research
- Alliance for Lupus Research
- Our Bodies, Our Selves
- APSFA
- Spondylitis Association of America
Living with Chronic Illness Blog Roll
- Chronic Babe
- How to Cope With Pain
- CI Coach (Working with Chronic Illness)
- But You Don’t Look Sick
- My Life With Fibro
- Getting Closer to Myself
- Despite Lupus
- Fighting Fatigue
- Being Chronically Ill Is A Pill
- Reasonably Well
- Sjogren’s and Me
- Rhymes with Migraine
- Taming The Wolf
- Together We Will Find A Cure
- Cure4Lupus.org
- Notes from the Garden Spot of the World
- LivingRheum
- Rheumatoid Arthritis Guy
- On The Road To A Cure
- Fibro Haven
Support Networks
- My Lupus/Fibro Support Group
- Lotsa Helping Hands
- Lupus MCTD Foundation (Ning community)
- FibroGuys (Ning community)
- Friends Health Connection
Local Resources for PNW Living and Fun (* means they are MLWT Guest Bloggers)
- Powell’s Books
- Around the Sun
- The Cycling Salon
- Portland – EcoMetro
- Soaring Eagle Wellness *
- PDXSwap.com
- Portland Farmer’s Markets
- Hands On Greater Portland
- Thrive Acupuncture *
- Follow Forkfly (Portland) on Twitter!
Web Resources
