PFAM is here for May 25th!

Okay, I am amazed that we are already in mid-May.  Thanks to Leslie at  Getting Closer To Myself   for reminding me to get going on calls for submissions.  I will be hosting the next Patients For A Moment (or PFAM) blog carnival and, even though it snuck up on me, I am really eager ...

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Thursday ,May 19, 2011 Chronic Illness, Coping, Events, Lifestyle, Lupus, Oregon, Outdoor Fun, Personal Stories, Self-Care, Social Support, Washington One comment

Today is National Fibromyalgia Awareness Day

I am pleased to introduce author and pain archeologist, Sue Ingebretson, as our guest for today.  You may already know her from her website Rebuilding Wellness and/or from her book, FibroWHYalgia . You can also find her on Twitter and Facebook.  She lives with Fibromyalgia and works diligently in creating self-care resources to address the ...

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Thursday ,May 12, 2011 Advocacy, Behaviors and Patterns, Books, Events, Fibromyalgia, Guest Blogger, Oregon, Pain management, Resources, Self-Care, Strategies, Washington No comments

It is World Lupus Day – got your armor on?

  If you are living with lupus, or know someone who is, you will undoubtedly come across references to it live or via internet.  Over the last three years of MLWT, I have watched the presence of lupus grow to new heights and am grateful to the powerful impact the internet has given to so many ...

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Tuesday ,May 10, 2011 Advocacy, Chronic Illness, Coping, Events, Internet, Lupus, Oregon, Personal Stories, Self-Care, Social Support, Washington No comments

May 7th~ World Ankylosing Spondylitis Awareness Day

I have had the pleasure of meeting and collaborating with some amazing people, including the crew at the Spondylitis Association of America. Although there isn’t an official chapter of the Spondylitis Association of America (SAA) here in Oregon, they do have a strong website and use social media (especially Twitter and Facebook) to connect with patients all ...

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Saturday ,May 7, 2011 Advocacy, Ankylosing Spondylitis, Arthritis Information, Coping, Education and Skill Building, Events, Internet, Oregon, Pain management, Personal Stories, Resources, Social Support, Vancouver, Washington No comments

May and Lupus back in the spotlight

Here we are again~ National Lupus Awareness Month.  International Lupus Awareness Day is May 10th.  In Oregon, SB348 (Senate Bill 348 designates May of each year as Lupus Awareness Month and makes May10, 2011, Oregon Lupus Day.) reflects the same awareness calendar, spotlighting lupus on behalf of many of us living with lupus...or does it?   I’ve ...

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Sunday ,May 1, 2011 Advocacy, Announcements, Autoimmune Diseases & Syndromes, Chronic Illness, Communication, Education and Skill Building, Events, Fibromyalgia, Lupus, MLWT, Oregon, Resources, Social Support, Treatment Approaches and Perspectives, Washington No comments

Perspective on Me, Myself and I

Here we are in the middle of April and, thankfully here in Oregon, the sun is beginning to give us a little break from the gray and rain.  Boy, will our bones love that, huh?  Even though Spring is in the air, there are still a number of us dealing with a pesky flu bug from Winter.  ...

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Monday ,April 18, 2011 Chronic Illness, Coping, Family, Fibromyalgia, Lupus, Oregon, Pain management, Personal Stories, Relationship-focused, Research, Self-Care, Washington 2 comments

Sowing our days, one plant at a time

I am a gardener.  Not a master gardener, by any means, but a gardener nonetheless.  Every spring (most often determined by the calendar than the weather these days), I get busy prepping for the fresh berries and veggies here at my finger tips.  The price to eat well is getting too high for me and I ...

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Monday ,April 11, 2011 Chronic Illness, Coping, Lupus, Nutrition and Gardening, Oregon, Self-Care, Stress Mgmt, Washington No comments

April Book for MLWT Discussion Group

Just a quick note~  Today begins our April MLWT book group discussion on Shelfari.com   and we are featuring Carla Ulbrich’s  How Can You NOT Laugh At A Time Like This? .  In fact, Carla has joined in on Shelfari and will take part in the discussion as well!  I missed out today, but I’ll be starting things up tomorrow ...

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Friday ,April 1, 2011 Books, Events, Friends, Humor, MLWT, Oregon, Personal Stories, Washington No comments

Irish Blessings to you all~

I love proverbs~ especially the cut-to-the-chase Irish variety.   I sat and read several on the  Irish Abroad  website, which is where I always seem to end up for anything Irish, while planning out our celebration meal today.  I recognized many of them, having never known where they originated.  I’ve been told I have a little Irish in ...

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Wednesday ,March 16, 2011 Autoimmune Diseases & Syndromes, Chronic Illness, Holidays & Socials, Lupus, Oregon, Resources, Washington No comments

Sound the trumpets, but heed the call

This was a big week for me and I intend to write about all that is going on in the next few days.  I want to begin with one of those “big” items, though, that has caused some mixed feelings and I appear to be one of the few people with lupus out there voicing ...

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Saturday ,March 12, 2011 Advocacy, Health, Lupus, Oregon, Treatment Approaches and Perspectives, Treatments and Drug Trials, Washington One comment

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