Quick note about this Saturday’s Beaverton-area Fibro/CFS Support Group Meeting

Positive Lifestyle Coach, MLWT Guest and overall great gal, Andréa Crisp, will be presenting on Laughter Yoga.  It will be a great opportunity to learn a little more about this wonderful breathing tool to use it when things get a little rocky in your day.  There are a lot of videos on the web that ...

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Thursday ,August 18, 2011 Autoimmune Diseases & Syndromes, Chronic Illness, Community, Coping, Education and Skill Building, Fibromyalgia, Guest Blogger, Humor, Local Resources, Lupus, Oregon, Pain management, Scleroderma, Social Support, Washington No comments

Elevator Speech

For many of us living with chronic health challenges, we spend a lot of time in elevators.    On good days, we try the stairs.  That time spent in elevators, however, can reflect our lives as a perfect metaphor for the “ups” and “downs” of where our emotional states are during our time in transit, between going ...

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Friday ,August 12, 2011 Chronic Illness, Coping, Social Support, Stress Mgmt One comment

Something new from Cheryl Coon, Attorney and MLWT Guest writer

Hello again~ Have you ever wondered how a lawyer analyzes a social security disability case and figures out whether a case can be won ?  How do the facts in a particular case add up -- or not -- to a winning case?  I decided to create a column dedicated to sharing an inside look at how ...

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Tuesday ,August 9, 2011 Arthritis Information, Chronic Illness, Community, Disability resources, Fibromyalgia, Guest Blogger, Internet, Local Resources, Lupus, Oregon, Pain management, Scleroderma No comments

The Sound of Silence

Darese (on right) and I, PNW Chapter LFA Portland Lupus Walk 2008 Sometimes, many months or years pass before I get around to checking in on some of my friends. One friend, in particular, would take what seemed to be forever to get back to my emails or phone calls, which would frustrate me since her lupus ...

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Saturday ,August 6, 2011 Friends, Lupus, Oregon, Relationship-focused, Washington 4 comments

Introducing a new network with a youthful kick

I am always on the lookout for new options for the younger set living with chronic illnesses.  So much of the information out there on the internet is geared towards assuming people living with illness are middle-aged and older.  Support programs and services often target their health management educational programs around people who have spent ...

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Saturday ,July 16, 2011 Chronic Illness, Communication, Coping, Lifestyle, Networking, Oregon, Personal Stories, Resources, Washington No comments

Whatcha’ doing today at 5pm, Oregon and SW Washington?

A quick note about our LFA Pacific NW Chapter’s webinar today~ “Living With Lupus” featuring Philip Moberg, MD out of Seattle.  He will be offering an overview of the disease and its many forms, the diagnostic process, common symptoms and current treatment options.  This is a great opportunity for you to reinforce or clarify ...

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Thursday ,July 14, 2011 Chronic Illness, Education and Skill Building, Local Resources, Lupus, Nutrition and Gardening, Oregon, Resources, Self-Care, Washington No comments

Participants Needed for Study of Naturopathy for “Hard-to-Diagnose”

If you have a multi-symptom, hard-to-diagnose or treat illness such as lupus, fibromyalgia, chronic fatigue, or multiple chemical sensitivities, please consider participating in an interview-based research study. Dr. Suzanne Morrissey, professor and medical anthropologist at Whitman College, would like to interview you about your experiences using naturopathic medicine for your illness(es). Interviews last 1 ...

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Wednesday ,June 29, 2011 Ankylosing Spondylitis, Autoimmune Diseases & Syndromes, Challenge and Opportunity, Chinese Medicine/Acupuncture, Chronic fatigue, Chronic Illness, Community, Fibromyalgia, Lupus, Lyme Disease, Oregon, Personal Stories, Research, Scleroderma No comments

There’s No Shame in Social Security Disability Benefits~ Meet our new MLWT Guest Cheryl Coon

There’s a popular and ugly misconception that folks who have been found disabled under a Social Security disability benefits program are: (a) elderly (b) undeserving (c) disabled for life; and/or (d) taking advantage of the system Our social security disability clients are young and old, wealthy and homeless. And their “impairments” - the word that Social Security uses ...

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Monday ,June 6, 2011 Chronic Illness, Community, Coping, Disability, Guest Blogger, Lupus, Oregon, Portland Metro, Problem-focused, Stress Mgmt, Washington No comments

Embracing living on the edge~ both in health and humor

“You grow up the day you have your first real laugh at yourself.” – Ethel Barrymore   In April, the MLWT book discussion group on Shelfari.com hosted Carla Ulbrich’s  book  How Can You NOT Laugh At A Time Like This? (Tell Me Press, 2011), where Carla herself joined in.  I was drawn to this book simply because I ...

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Monday ,May 30, 2011 Books, Chronic Illness, Coping, Humor, Lupus, Oregon, Personal Stories, Problem-focused, Self-Care, Social Support, Washington One comment

Making Note of Lyme Disease Awareness this May

As we come to a close this May, I wanted to make special mention of a disease that is often misunderstood and lumped in with lupus in the diagnostic stages.  I was initially told I had Lyme when I didn’t present the usual symptoms of lupus and have met many people who were wrongly diagnosed ...

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Friday ,May 27, 2011 Autoimmune Diseases & Syndromes, Diagnosis, Guest Blogger, Health, Lyme Disease, Medical Support, Oregon, Personal Stories, Self-Care, Washington No comments

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