Category Archives: Resources

Lupus makes the TV lineup tomorrow

Have any of you noticed the increase in lupus talk happening in the media?  Lady Gaga, Snoop Dogg’s daughter, and John Stewart comparing lupus to the FOX News Network?  You don’t only have to s......

Breathing Lessons

Having a book to read is never a problem and I have the bookshelves to prove it.  My biggest dilemma is in deciding which book to read.  I immediately head to the library when I get stuck choosi......

A Cautionary Tale

For this next edition of Patients For a Moment (July 28th), hosted by Queen of Optimism on her blog, she presents the question: “What is the nicest thing (or things) anyone has done for yo......

Knowing Where Illness Stops and Love Begins

I’m working down my catch up list of posts and have reached this trailer for a new movie that addresses living with illness (lupus) and learning to love right along with it. Check out Love......

A Penny For Your Thoughts

On Tuesday night, July 6th, I watched the PBS NewsHour (on OPB Channel 10 ) segment (reported by correspondent Betty Ann Bowser and funded by  Robert Wood Johnson   Foundation ) about the new he......

Scleroderma Foundation OR Chapter on AM Northwest This Thursday

  I received a note from the Oregon Chapter of the Scleroderma Foundation that they will once again be on our own KATU Channel 2 AM Northwest morning show!  This Thursday,July 1st, AM Northwest ......

People First!

Today, BloggersUnite is hosting an online event entitled People First: Empowering People With Disabilities . I’ve been having unusually prominent symptoms from my lupus.  I always anticipate a ......

Playing the matching game

My good friend, and fellow blogging buddy, Leslie, who authors Getting Closer To Myself   recently posted about a topic that is at the core of my work here in our Pacific Northwest lupus and chr......

A Day of Empowerment

After about three weeks of the most painful headaches I’ve ever had, I’ve been a little overwhelmed with trying to make up all that time off.  I don’t know what brought them on......

Want to learn more about Pilates?

Our Oregon Scleroderma Foundation Chapter will be holding their monthly support group meeting this Saturday, May 8th.  As always, their support groups are open to all (even if you don’t ha......

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