Category Archives: Research
Okay, I am beyond excited about this collaboration between technology and molecular biology~ and wanted to share a link with you today from NPR.
First, this is a great flu-season topic to cover,......
2011/06/29
Ankylosing Spondylitis, Autoimmune Diseases & Syndromes, Challenge and Opportunity, Chinese Medicine/Acupuncture, Chronic fatigue, Chronic Illness, Community, Fibromyalgia, Lupus, Lyme Disease, Oregon, Personal Stories, Research, Scleroderma
No comments
If you have a multi-symptom, hard-to-diagnose or treat illness such as lupus, fibromyalgia, chronic fatigue, or multiple chemical sensitivities, please consider participating in an interview-bas......
2011/05/25
Advocacy, Announcements, Challenge and Opportunity, Events, Lupus, MLWT, Oregon, Personal Stories, Research, Self-Care, Travel, Washington
No comments
Today we are hosting Patients For A Moment (PFAM) and the theme was to divulge the wishes, dreams, goals and plans for the summer months ahead. I’m noticing a slow-down in PFAM participation an......
2011/04/18
Chronic Illness, Coping, Family, Fibromyalgia, Lupus, Oregon, Pain management, Personal Stories, Relationship-focused, Research, Self-Care, Washington
2 comments
Here we are in the middle of April and, thankfully here in Oregon, the sun is beginning to give us a little break from the gray and rain. Boy, will our bones love that, huh?
Even though Spring......
This was a big week for me and I intend to write about all that is going on in the next few days. I want to begin with one of those “big” items, though, that has caused some mixed feelings and ......
Here is an interesting opportunity for any of you who are living with lupus and use writing as a way of coping. If you’re uncomfortable with getting involved in research using experimenta......
2010/05/18
Autoimmune Diseases & Syndromes, Chronic Illness, Community, Coping, Education and Skill Building, Local Resources, MLWT, Oregon, Portland Metro, Research, Self-Care, Social Support, Strategies, Support Groups, Treatment Approaches and Perspectives, Washington
2 comments
My good friend, and fellow blogging buddy, Leslie, who authors Getting Closer To Myself recently posted about a topic that is at the core of my work here in our Pacific Northwest lupus and chr......
2010/03/09
Chronic Illness, Community, Coping, Diagnosis, Education and Skill Building, Events, Local Resources, Oregon, Scleroderma, Support Groups, Treatment Approaches and Perspectives, Treatments and Drug Trials, Washington
No comments
Just a reminder about the Educational Seminar going on this Saturday, offered through the Oregon Chapter of the Scleroderma Foundation. Even if you don’t have this particular disease, the......
An announcement from our local Scleroderma Chapter:
Have You Experienced a Lifetime Cap on Your Health Insurance?
The Scleroderma Foundation is interested in speaking with scleroderma patients w......
2009/09/04
Announcements, Challenge and Opportunity, Chronic Illness, Communication, Community, Creativity, Fibromyalgia, Local Resources, Lupus, MLWT, Oregon, Pilots and Programs, Portland Metro, Relationship-focused
No comments
My Life Works Today! has been invited to design a curriculum using an internationally-recognized communications system to use for managing chronic illness. We are looking for a few participants ......