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Category Archives: Travel

Summertime, Summertime, uh, oh, Summertime ♫

2011/05/25 Advocacy, Announcements, Challenge and Opportunity, Events, Lupus, MLWT, Oregon, Personal Stories, Research, Self-Care, Travel, Washington No comments

Today we are hosting Patients For A Moment (PFAM) and the theme was to divulge the wishes, dreams, goals and plans for the summer months ahead. I’m noticing a slow-down in PFAM participation an......

Lost in Translation

2009/08/10 Challenge and Opportunity, Chronic Illness, Communication, Education and Skill Building, Lupus, Oregon, Personal Stories, Relationship-focused, Social Support, Stress Mgmt, Travel, Washington No comments

“Failure To Communicate“ – spoken by “The Captain“, the domineering prison warden played by Strother Martin in the 1967 movie Cool Hand Luke. During my visit to Ge......

It’s all a blur

2009/08/03 Announcements, Challenge and Opportunity, Chronic Illness, Coping, Lupus, MLWT, Oregon, Stress Mgmt, Travel, Washington No comments

I had no idea it would take me this long to get back into writing here. Thank you all who wished me well on the trip ~ your encouragement helped me to completely forget about any challenges lup......

Hallo!

2009/07/23 Announcements, Challenge and Opportunity, Internet, Lupus, MLWT, Oregon, Stress Mgmt, Travel, Treatments and Drug Trials, Washington No comments

It took a little more than a few clicks of my heels, but I’ve made it back from vacation in one piece. It may be a little early to tell about how I held up and I have plenty to write abou......

Still flying the friendly skies, just with different flight plans

2009/07/07 Announcements, Challenge and Opportunity, Chronic Illness, Coping, Lupus, Oregon, Personal Stories, Stress Mgmt, Targets, Travel, Washington One comment

This past weekend, we celebrated our country’s independence here in the US. In the midst of my celebrating, I began my preparations to go on vacation with my family and really struggled t......

Our Voices for Lupus Awareness: Jess will roam if she wants to

2009/05/29 Advocacy, Challenge and Opportunity, Coping, Diagnosis, Guest Blogger, Lifestyle, Lupus, MLWT, Oregon, Personal Stories, Social Support, Travel, Treatment Approaches and Perspectives, Washington No comments

My life with lupus. Hmmm, I’m not even sure what that means to me just yet. Last year I began the journey to a lupus diagnosis. I’m not quite finished with the diagnosis, but we......

Our Voices for Lupus Awareness Month: Carolyn & Jerry

2009/05/09 Advocacy, Autoimmune Diseases & Syndromes, Coping, Diagnosis, Events, Fibromyalgia, Guest Blogger, Internet, Lifestyle, Lupus, Oregon, Oregon Coast, Personal Stories, Self-Care, Social Support, Travel, Washington No comments

I’d like to introduce myself and my husband to all of you. We’re Jerry & Carolyn Glein and we’ve been actively dealing with Systemic Lupus Erythematosus and everything that......

Music, Mileage and Memories

2009/04/06 Challenge and Opportunity, Coping, Diagnosis, Lupus, Oregon, Outdoor Fun, Stress Mgmt, Travel, Washington One comment

We all know about the ‘healing’ properties of music. Especially for us with chronic illness and pain, music can act as a way to transport ourselves out of our present when things get too ......