Category Archives: Lupus
2010/08/23
Autoimmune Diseases & Syndromes, Challenge and Opportunity, Chronic Illness, Communication, Coping, Identity, Lupus, Oregon, Relationship-focused, Social Support, Treatment Approaches and Perspectives, Washington
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“What advice would you give, or what would you want non-chronically ill people to know about your illness and your life?”
This question brought up something I hadn’t thought about in years. Alt......
2010/08/16
Autoimmune Diseases & Syndromes, Behaviors and Patterns, Coping, Health, Lupus, Oregon, Outdoor Fun, Personal Stories, Self-Care, Strategies, Treatment Approaches and Perspectives, Washington, Work and Career
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I’ve been around the block a bit when it comes to knowing what I should and should not do because of my lupus. (Note: the lower case “l”) For over a decade, I have managed my living with illnes......
2010/08/05
Advocacy, Family, Health, Lifestyle, Local Resources, Lupus, Oregon, Personal Stories, Social Support, Television and Radio, Washington
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Have any of you noticed the increase in lupus talk happening in the media? Lady Gaga, Snoop Dogg’s daughter, and John Stewart comparing lupus to the FOX News Network? You don’t only have to s......
2010/07/25
Autoimmune Diseases & Syndromes, Books, Chronic Illness, Diagnosis, Health, Labs & Testing, Lupus, MLWT, Oregon, Personal Stories, Relationship-focused, Social Support, Treatment Approaches and Perspectives, Washington
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Having a book to read is never a problem and I have the bookshelves to prove it. My biggest dilemma is in deciding which book to read. I immediately head to the library when I get stuck choosi......
For this next edition of Patients For a Moment (July 28th), hosted by Queen of Optimism on her blog, she presents the question:
“What is the nicest thing (or things) anyone has done for yo......
2010/07/16
Advocacy, Autoimmune Diseases & Syndromes, Challenge and Opportunity, Chronic Illness, Family, Friends, Lupus, Men's support, Oregon, Resources, Social Support, Washington
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I’m working down my catch up list of posts and have reached this trailer for a new movie that addresses living with illness (lupus) and learning to love right along with it.
Check out Love......
2010/07/08
Advocacy, Chronic Illness, Disability, Fibromyalgia, Health, Lupus, Oregon, Personal Stories, Resources, Scleroderma, Self-Care, Washington
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On Tuesday night, July 6th, I watched the PBS NewsHour (on OPB Channel 10 ) segment (reported by correspondent Betty Ann Bowser and funded by Robert Wood Johnson Foundation ) about the new he......
2010/06/24
Advocacy, Books, Chronic Illness, Community, Disability, Events, Internet, Local Resources, Lupus, Oregon, Resources, Social Support, Washington, Work and Career
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Today, BloggersUnite is hosting an online event entitled People First: Empowering People With Disabilities .
I’ve been having unusually prominent symptoms from my lupus. I always anticipate a ......
2010/06/11
Arthritis Information, Autoimmune Diseases & Syndromes, Chinese Medicine/Acupuncture, Chronic Illness, Fibromyalgia, Friends, Guest Blogger, Lupus, Oregon, Outdoor Fun, Stress Mgmt, Treatment Approaches and Perspectives, Washington
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Last month, I went on a hike through Tryon State Park with my new friend, MLWT Guest Blogger and Acupuncturist, Becca Seitz . Despite my constant and intense headaches weeks prior, I felt th......
Monday was a day set aside to reflect on personal sacrifice, dedication to values, making commitments to those we share our lives with and things to believe in. It was a day when we said “Than......
(Photo source: BigFoto.com)
