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	<title>My Life Works Today! &#187; Fibromyalgia</title>
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	<link>http://mylifeworkstoday.com</link>
	<description>Your Life ~ Your Wellness ~ Your Way</description>
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		<title>Is it plugged in?</title>
		<link>http://mylifeworkstoday.com/2012/02/18/is-it-plugged-in/</link>
		<comments>http://mylifeworkstoday.com/2012/02/18/is-it-plugged-in/#comments</comments>
		<pubDate>Sun, 19 Feb 2012 00:23:06 +0000</pubDate>
		<dc:creator>maria</dc:creator>
				<category><![CDATA[Autoimmune Diseases & Syndromes]]></category>
		<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Community]]></category>
		<category><![CDATA[Fibromyalgia]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[Lifestyle]]></category>
		<category><![CDATA[Local Resources]]></category>
		<category><![CDATA[Lupus]]></category>
		<category><![CDATA[Oregon]]></category>
		<category><![CDATA[Pain management]]></category>
		<category><![CDATA[Treatment Approaches and Perspectives]]></category>
		<category><![CDATA[Washington]]></category>
		<category><![CDATA[Living Well With Chronic Conditions]]></category>
		<category><![CDATA[medication management]]></category>
		<category><![CDATA[wellness]]></category>

		<guid isPermaLink="false">http://mylifeworkstoday.com/?p=3271</guid>
		<description><![CDATA[Okay, I had a conversation today with my mom that triggered an immediate need to post something.  Nothing like a rant about my mother to get me motivated to write. First, some background~ My mom is 72 years old and lives with me.  She has been battling physical challenges since before I was even a [...]]]></description>
			<content:encoded><![CDATA[<p>Okay, I had a conversation today with my mom that triggered an immediate need to post something.  Nothing like a rant about my mother to get me motivated to write.</p>
<p>First, some background~</p>
<p>My mom is 72 years old and lives with me.  She has been battling physical challenges since before I was even a glimmer in her eye.  In fact, I suspect I am a DES baby due to the nine months of nausea I put her through while pregnant with me.  And, believe me, she works that one into the ground.</p>
<p>Currently, she struggles with constant pain (to name only one challenge), due to a combination, we suspect, from degenerative disc disease, fibromyalgia and nerve damage from an accident many years ago.  I think there are probably even more factors like medication side effects, nutrition (she loves her convenience foods) and lack of social support (I can’t be everything and animals don’t ‘talk’).  The point is that she knows what being on medication is about, simply because this behavior of pill popping is so deeply ingrained into her very being.</p>
<p>So, when she started complaining about acute stomach pain – she has chronic pain, but these new sharp pains were new for her – I began asking her questions.  Basically, our conversation today went something like this:</p>
<p>&nbsp;</p>
<p style="padding-left: 30px;"><span style="color: #0000ff;"><em><strong>Mom:</strong></em></span>  Boy, my stomach is killing me.</p>
<p style="padding-left: 30px;"><span style="color: #ff6600;"><em><strong>Me:</strong></em></span>  Could it be your ulcer?</p>
<p style="padding-left: 30px;"><span style="color: #0000ff;"><em><strong>Mom: </strong></em></span> No, this is different.  Every time I eat something, I get shooting pain.  I just don’t want to eat.  And ice cream doesn’t cool things down like it usually does. [Insert my head shake of frustration here – ulcers and dairy don’t mix for her and she knows that.]</p>
<p style="padding-left: 30px;"><em><span style="color: #ff6600;"><strong>Me:</strong></span></em>  Are you accidentally doubling up on your meds (which she does when she forgets to take one) or taking something new?</p>
<p style="padding-left: 30px;"><em><span style="color: #0000ff;"><strong>Mom</strong></span></em>: I don’t think I’m doing that. [insert another head shake by me]  I am on something new, though.</p>
<p style="padding-left: 30px;"><em><span style="color: #ff6600;"><strong>Me: </strong></span></em> This has been going on for over a month, Mom.  Did you call your doctor like you said you would last week?</p>
<p style="padding-left: 30px;"><span style="color: #0000ff;"><em><strong>Mom: </strong></em></span> Well, I will if it gets worse.  It has been better lately.  Just keeps coming back. [insert, ...well, you know]</p>
<p style="padding-left: 30px;"><span style="color: #ff6600;"><em><strong>Me:</strong></em> </span> Let me read the bottle, okay?</p>
<p>&nbsp;</p>
<p>Mom hands me the bottle and I begin to read off <span style="color: #ff6600;"><em><strong>out loud</strong></em></span> what is stated in the smallest font I’ve ever seen.  I read what it is, who the manufacturer is, the dosage and warnings.  All appears to be in order with the usual information, but I’m thinking we may want to check with our pharmacist about any prescription interactions.  Then, I get to “<em><span style="color: #0000ff;"><strong>Take with food</strong></span></em>.”</p>
<p>&nbsp;</p>
<blockquote>
<p style="text-align: center;"><span style="color: #0000ff;"><em><strong>Mom:</strong></em></span>  Oh, with food?</p>
</blockquote>
<p>&nbsp;</p>
<p>At the risk of sounding like a broken record, this topic is covered in the <a title="Oregon Living Well website" href="http://public.health.oregon.gov/DiseasesConditions/ChronicDisease/LivingWell/Pages/participants.aspx" target="_blank"><strong>Living Well workshops</strong> </a>offered all over Oregon and <strong><span style="color: #0000ff;"><a title="Washington State website" href="http://livingwell.doh.wa.gov/workshops" target="_blank">Washington</a></span></strong>.  Even though sometimes participants chuckle when I bring up how we can easily misunderstand how to take our medications, this scenario with my mom only proves how taking a minute to read one of a gazillion bottles over again just to be mindful of what we’re taking, why we’re taking it, and, most importantly, how we are to take it is crucially important.  When it comes to creative pill popping due to time constraints, lapse in memory or just not wanting to wait to eat, I’m also guilty as charged.</p>
<p>Mom has medications that require some with food and some without, leading her to simply want to organize her regimen that makes it more memory-friendly (not working).<span style="color: #0000ff;"><em><strong> This re-organizing, though, causes her to easily confuse the appropriate requirements that allow each medication to do its job as designed</strong></em></span>.  We all do that, don’t we?</p>
<p>Mom&#8217;s appointment is this Monday and I gave her a good scolding to prep her for the one waiting for her during her appointment with her doctor.  Mine will probably be the more gentle chew out of the two, but she deserves what she will get and her situation will only support the belief among the medical community that patients aren’t taking their medications correctly. They&#8217;re right.</p>
<p>For the sake of all of us wanting to be taken seriously by our healthcare providers, <span style="color: #ff6600;"><em><strong>we must be mindful every time we take our meds</strong></em></span>.  How irritating is it when we complain something doesn’t work like it is supposed to and some smart a** asks us that inevitable question <span style="color: #0000ff;"><strong>“Is it plugged in?”</strong></span></p>
<p>We all need to remember to ask ourselves that same question with the next pill we take~  no matter how experienced we our with our treatment plans, reminding ourselves to<em><span style="color: #ff6600;"><strong> pay closer attention to our own self-care behaviors is really important</strong></span></em>.</p>
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		<title>MLWT Musings Member Offerings</title>
		<link>http://mylifeworkstoday.com/2012/01/19/mlwt-musings-member-offerings/</link>
		<comments>http://mylifeworkstoday.com/2012/01/19/mlwt-musings-member-offerings/#comments</comments>
		<pubDate>Fri, 20 Jan 2012 03:00:23 +0000</pubDate>
		<dc:creator>maria</dc:creator>
				<category><![CDATA[Autoimmune Diseases & Syndromes]]></category>
		<category><![CDATA[Books]]></category>
		<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Communication]]></category>
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		<category><![CDATA[Fibromyalgia]]></category>
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		<category><![CDATA[Social Support]]></category>
		<category><![CDATA[Stress Mgmt]]></category>
		<category><![CDATA[Oregon]]></category>
		<category><![CDATA[support]]></category>
		<category><![CDATA[support groups]]></category>
		<category><![CDATA[Washington]]></category>
		<category><![CDATA[wellness]]></category>

		<guid isPermaLink="false">http://mylifeworkstoday.com/?p=3162</guid>
		<description><![CDATA[In the Celebrations edition of the MLWT enewsletter, I introduced a new column “Community Sharing.”  I will be announcing three topics that come into my email inbox on a regular basis and I am asking those of you who receive the enewsletter to send back your responses so that I can post them here on [...]]]></description>
			<content:encoded><![CDATA[<p>In the <span style="color: #ff6600;"><strong><em>Celebrations</em></strong></span> edition of the <strong><span style="color: #0000ff;">MLWT enewsletter</span></strong>, I introduced a new column “<span style="color: #ff6600;"><strong>Community Sharing</strong></span>.”  I will be announcing three topics that come into my email inbox on a regular basis and I am asking those of you who receive the enewsletter to send back your responses so that I can post them here on the site.</p>
<p><span style="color: #ff6600;"><strong>Here are the three community requests and the responses I received – thank you to those of you contributing to the discussion!</strong></span></p>
<p>&nbsp;</p>
<p><span style="color: #0000ff;"><em><strong>Request #1: Some suggestions on how to respond to family/friends who question the inconsistencies of our symptoms (for example, &#8220;You were fine a half hour ago!&#8221;)</strong></em></span></p>
<p>A few people recommended <em><strong><a title="But You Don't Look Sick website" href="http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/" target="_blank">The Spoon Theory</a></strong></em>, a familiar tool using something tangible to reflect a measurement of how much energy it takes to get through a day.  Although not everyone with lupus experiences challenges with fatigue, using spoons (or I’ve also heard people use other things like tooth picks) is a good way to express loss that others can relate to.</p>
<p>On a similar note, I recently learned of a communication tool that a dear friend, and organizer for the <strong><a title="Ning Community open to everyone including outside Oregon!" href="http://portlandfibrocfs.com/" target="_blank">Portland-area Fibromyalgia/CFS support group</a></strong> , <span style="color: #0000ff;"><strong>Tamara</strong></span> uses to give her husband a signal for the day regarding how she’s feeling. <span style="color: #ff6600;"><em><strong> When her clear jar is full of the polished pieces of glass, she’s doing great.  As the day goes on, she removes pieces as needed and, without saying a word, he ‘sees’ where she is at a given time</strong></em></span>.  What makes this a wonderful way of communicating is that they both developed this language together and by taking out the need to exchange words taxes her less and strengthens their relationship more. Co-creating a communication tool that speaks clearly and compassionately is something maybe to ask your friends to take part in.</p>
<p>Of course, there is the standard communication tool of <span style="color: #0000ff;"><strong>“I feel&#8230;” messages</strong></span>, as I was reminded by a graduate of the Living Well with Chronic Conditions workshop, <span style="color: #0000ff;"><strong>Laurie</strong></span>.  These messages, with practice, help take some of the defensiveness out of a situation by focusing more on how we feel or the concerns that we have when something is said or done.  In the situation that prompted this question here, the member who sent me the email felt defensive immediately when her sister-in-law couldn’t understand what happened within a half hour that changed her energy levels.  She snapped back and wished that she had a better, and cleverer, response that wouldn’t have led to hurt feelings all around.  Here is an example of how a conversation might happen and how using these types of messages can make the same conversation go a little better for everyone:</p>
<p style="padding-left: 30px;"><strong><span style="text-decoration: underline; color: #ff6600;">Without an “I” message –</span></strong></p>
<p style="padding-left: 60px;"><strong></strong><span style="color: #0000ff;"><strong><em>Sister-in-law</em></strong>:</span> “You were fine a half hour ago!”</p>
<p style="padding-left: 60px;"><span style="color: #0000ff;"><strong><em>MLWT member</em></strong>:</span> “So, what are you saying? That I’m making it up? Thanks for the compassion&#8230;”</p>
<p style="padding-left: 30px;"><span style="text-decoration: underline;"><span style="color: #ff6600; text-decoration: underline;"><strong>With an “I” message</strong></span></span> –</p>
<p style="padding-left: 60px;"><span style="color: #0000ff;"><strong><em>Sister-in-law</em></strong></span>: “You were fine a half hour ago!”</p>
<p style="padding-left: 60px;"><span style="color: #0000ff;"><strong><em>MLWT member</em></strong></span>: “I feel like I need to defend myself when I can’t explain how much my body puts me through.  I really want to figure out a way of telling you how I feel so that we could understand each other better.”</p>
<p><span style="color: #ff6600;"><em><strong>The key here is that the MLWT member focuses on what she is feeling, thinking and wanting</strong></em></span> without using those dreaded “You” messages that feel great in spewing to others, but cause emotions to get away from us&#8230; leading to defensiveness towards everyone.  Whether the sister-in-law commits herself to actually help figure out a way to better communicate is out of the MLWT member&#8217;s hands.  First, and foremost, the MLWT member gets what is on her mind off her chest and maintains a sense of calm (managing stress) while coming up with an idea to ‘fix’ the situation (proactive and constructive). <span style="color: #0000ff;"><em><strong>These messages may not feel very natural at first, but taking that extra minute to focus on taking care of you gives more opportunity for positive results than there would be otherwise. </strong></em></span></p>
<p><span style="color: #ff6600;"><strong>Finally</strong></span>, MLWT member, <span style="color: #0000ff;"><strong>Janice</strong></span>, simply stated:  “Tell her to just smile and nod – people will never really understand what we’re going through.”  Good point, Janice.</p>
<p>&nbsp;</p>
<p><span style="color: #0000ff;"><strong><em>Request #2:  Kitchen products </em></strong><em><strong>that have good grips </strong></em><strong>and </strong><em><strong>are light weight</strong></em></span></p>
<p>Here are some responses I received to this MLWT member request:</p>
<p>-<strong><a title="OXO products website" href="http://www.oxo.com/default.aspx" target="_blank">OXO products</a></strong></p>
<p>-<strong><a title="Their website - visit their stores, too, and request adaptive products to be sold!" href="http://www.kitchenkaboodle.com/" target="_blank">Kitchen Kaboodle</a></strong> sometimes has great little tools, or any senior living source (<span style="color: #0000ff;"><strong>Gladys</strong></span>)</p>
<p>-<strong><a title="Arthritis Foundation - Kitchen gadgets" href="http://www.arthritistoday.org/daily-living/do-it-easier/in-the-kitchen/stress-free-kitchen-tools.php" target="_blank">Arthritis Foundation website</a></strong> sometimes mentions products (<span style="color: #0000ff;"><strong>Laurie</strong></span>)</p>
<p><span style="color: #ff6600;"><em><strong>Anyone else?</strong></em></span></p>
<p>&nbsp;</p>
<p><span style="color: #0000ff;"><em><strong>Request #3:  Any books that help mothers be supportive to their children who are struggling with chronic health challenges (preferably non-clinical)</strong></em></span></p>
<p>I’m still compiling, but <strong><a title="Children with chronic conditions" href="http://www.med.umich.edu/yourchild/topics/chronic.htm" target="_blank">Universityof Michigan</a></strong> offers a great website that covers some really important points that you may be interested in.  It isn’t easy to find sources covering illnesses like lupus or fibromyalgia, but consider seeking out books and websites that cover areas like cancer (LOTS of books available).  Even terminal or hospice sources that discuss caretaking for communication tips. Of course, the <strong><a title="Children with Lupus - LFA website article" href="http://www.lupus.org/webmodules/webarticlesnet/templates/new_learnparents.aspx?articleid=2356&amp;zoneid=530" target="_blank">National Lupus Foundation</a></strong> is always open to hearing your requests, offers topics like this in their webinars and has a book recommendation list  you may want to check out.<em></em></p>
<p><em><strong> </strong></em></p>
<p>If you’re on Twitter and have some additional resource ideas, use <span style="color: #0000ff;"><strong>#CIbook</strong></span> within your tweet and I’ll find it!  You are more than welcome to share them here, as well.</p>
<p><em><span style="color: #ff6600;"><strong>The Winter/Spring MLWT Musings enewsletter will be out in late February, so if you have any thing you want to put out there to the community members to help problem solve an issue, email me here and I’ll get it into the next edition</strong></span></em>.</p>
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		<title>How do I see my Illness?</title>
		<link>http://mylifeworkstoday.com/2011/12/21/how-do-i-see-my-illness/</link>
		<comments>http://mylifeworkstoday.com/2011/12/21/how-do-i-see-my-illness/#comments</comments>
		<pubDate>Wed, 21 Dec 2011 20:11:33 +0000</pubDate>
		<dc:creator>maria</dc:creator>
				<category><![CDATA[Ankylosing Spondylitis]]></category>
		<category><![CDATA[Arthritis Information]]></category>
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		<guid isPermaLink="false">http://mylifeworkstoday.com/?p=3005</guid>
		<description><![CDATA[I missed the deadline for the PFAM this month, but Leslie has graciously allowed us to submit late and here is mine. I offer both in-person and online Discovery Sessions that focus on wellness – not just illness, but the overall concept of health as “&#8230;a state of complete physical, mental and social well-being.” (Straub, [...]]]></description>
			<content:encoded><![CDATA[<p>I missed the deadline for the PFAM this month, but Leslie has graciously allowed us to submit late and here is mine.</p>
<p>I offer both in-person and online <strong><a title="Wellness Discovery Sessions" href="http://mylifeworkstoday.com/wellness-facilitation-2/wellness-discovery-sessions/" target="_blank">Discovery Sessions</a></strong> that focus on <em>wellness</em> – not just illness, but the overall concept of health as “&#8230;a state of complete physical, mental and social well-being.” (Straub, 2012)  If someone wants to look at their relationships, their work, their feelings about their health challenges, or simply wanting to open up to learning more about what is going on “inside”, the Discovery Sessions are a quick, easy and non-therapeutic (meaning they aren’t therapy) activity to tap into your intuition.</p>
<p>For PFAM, I did a session myself on addressing the theme on using images to ‘scrapbook’ my illness.  Below, you will see what you would do on an online Discovery Session with me.  The sessions only allow five minutes to put together the collage – that is important.  We want to tap into our intuition and choose images <em>before </em>we have a chance to block them out or think too much about them by bringing in our feelings, perceptions, concerns and so forth.  Every session begins with a prompt we come up with when talking before hand and, for mine today, I chose “How do I see my illness?”</p>
<p>Here’s what I came up with:</p>
<p><a href="http://mylifeworkstoday.com/wp-content/uploads/2011/12/How-do-I-see-my-illness.jpg"><img class="aligncenter size-medium wp-image-3008" title="How do I see my illness" src="http://mylifeworkstoday.com/wp-content/uploads/2011/12/How-do-I-see-my-illness-300x225.jpg" alt="" width="300" height="225" /></a></p>
<p>My notes that I took during the session:</p>
<blockquote><p>“<strong><em>This image set offers me more image-reference rather than explicit photos, which made this session more reflective. Lots of blues, surprisingly more serene while doing it and images chosen imply it.</em></strong></p>
<ul>
<li><strong><em>Action refers to work, which is constant with C.I.</em></strong></li>
<li><strong><em>Middle image is ripe tomatoes, I choose to represent setting seed.</em></strong></li>
<li><strong><em>Smallest image of hospital bed acts as a constant reminder that floats above everything.</em></strong></li>
<li><strong><em>Image showing invisible illness among visible social ties.</em></strong></li>
<li><strong><em>Are those ruins or indications that over time I&#8217;ve been worn, but still here to be marveled at in terms of achievements?</em></strong></li>
<li><strong><em>The colorful salad represents both nutrition, that I am what I eat, but also the ingredients I need to constantly choose to make my life the healthiest it can be.</em></strong></li>
<li><strong><em>The images of the swirling circles, of course, represents my immune system that is involved with the work I must do. It interacts with the level of visibility I choose to have and the seeds I plant every day for myself and those around me.</em></strong></li>
<li><strong><em>Notice the unintentional direction that seems to swirl towards the hospital bed, but is distracted from reaching it due to the other images it overlaps. Tells me I still can make a difference in my overall health direction.</em></strong><span style="color: #000000;">”</span></li>
</ul>
</blockquote>
<p style="text-align: center;"><span style="color: #ff6600;"> (C.I.= chronic illness)</span></p>
<p>Again, these sessions aren’t therapy, even though they have therapeutic properties.  I am a wellness facilitator, which simply means I organize the setting and coordinate the process, but the participant – you – choose the image meanings, define the connections, and take from it what you want to use.  My role is in simply asking the questions without any expectations or judgment.  I supply the momentum to assist you in exploring what you want to learn from <em>you </em>yourself<em>. </em>Who better to answer your own questions?</p>
<p>I am offering these <span style="color: #ff6600;"><strong><a title="Learn more here!" href="http://mylifeworkstoday.com/wellness-facilitation-2/wellness-discovery-sessions/" target="_blank">one to one-half hour online sessions for only $15 throughout December and January</a></strong></span>,  because I want anyone to have a chance to take part.  It is a wonderful, self-care opportunity to play and learn, without concerns of lacking ‘creativity’.  We didn’t worry about that when we made our first collage in grade school, so why stress out about it now that we are all grown up?  That need to explore is still within us, but we’ve had many years to build up our barriers and walls of fear.  If you have ever spent time with grandchildren or your own children and loved how carefree they are when creating, that is what these sessions can offer you, too.</p>
<p><strong><em><span style="color: #0000ff;">This is the season for joy~ and online Discovery Sessions are just one more opportunity to create some for yourself (or a friend) who could use a little lightness in their day.</span></em></strong></p>
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		<title>Being more attentive in my own care</title>
		<link>http://mylifeworkstoday.com/2011/12/11/being-more-attentive-in-my-own-care/</link>
		<comments>http://mylifeworkstoday.com/2011/12/11/being-more-attentive-in-my-own-care/#comments</comments>
		<pubDate>Mon, 12 Dec 2011 00:43:32 +0000</pubDate>
		<dc:creator>maria</dc:creator>
				<category><![CDATA[Autoimmune Diseases & Syndromes]]></category>
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		<category><![CDATA[wellness]]></category>

		<guid isPermaLink="false">http://mylifeworkstoday.com/?p=2976</guid>
		<description><![CDATA[I have been exploring mindfulness practices during my three month hiatus from the blog and have discovered some amazing changes in my own health and well-being.  I stepped away from it in the last week and feel things reeling back out of control, so I know it was doing me some good. In case you [...]]]></description>
			<content:encoded><![CDATA[<p>I have been exploring mindfulness practices during my three month hiatus from the blog and have discovered some amazing changes in my own health and well-being.  I stepped away from it in the last week and feel things reeling back out of control, so I know it was doing me some good.</p>
<p>In case you don’t already know, I simply cannot get myself to sit still and meditate.  The whole idea of being present in the moment is a tough pill to swallow.  With the multiple, crushing blows I’ve had happen recently— health and otherwise—I figured it was time to more seriously explore more options.</p>
<p>&nbsp;</p>
<p>Let’s face it, autoimmune disease and stress go hand-in-hand, and with life being hectic and chaotic enough, I know I don’t need to add more to the mix with my outrageous need to “do it all and perfectly” belief system.  Although there are specific mindfulness trainings and therapeutic practitioners available to guide us in exploring this practice more fully, I offer my laymen’s version of what little I’ve been doing on my own.</p>
<p><span style="color: #0000ff;"><em><strong>Mindfulness </strong></em></span>practices are exercises to focus on the present moment in a non-judgmental way.  Stemming from Buddhist spiritual beliefs, practicing mindfulness in the Western world falls more into the positive psychology realm as a form of emotional self-care.  By paying attention to my breathing and setting aside any thoughts that are not associated with my focus of the moment as they come into my mind, I practice <em>paying attention</em>.  By doing this, I not only can slow down my oxygen needs, my heart rate and calm down my system’s fight-or-flight reactions, but also give my entire body a loving time-out&#8230;all without having to sit in a lotus position.  There are three activities where I use this increased attention practice.  I’ll only talk about one for now:  focusing on <span style="color: #0000ff;"><em><strong>sleep</strong></em></span>.</p>
<p>I have incorporated being more mindful into my night-time prep to help improve my sleep.  By focusing on what I do, why I do it and paying attention to the details like the sound of water, the sensations like washing my face or brushing my teeth, it is amazingly calming.  When the thoughts of what I didn’t get to on my to-do list show up, I simply give myself permission to deal with it “later” and get back to paying attention to preparing for bed.  I cannot tell you how this simple ritual has improved my quality of sleep.  My brain can go a mile a minute if I let it and it has often caused me to wake up or not sleep at all, creating more pain and negative moods the following morning.  During the three weeks I tried it out, I tracked 50% more hours of sound sleep, better mood mornings and more energy.  No extra time, no special equipment, done right in my own home while doing what I normally do anyway.  Just a shift in <em>how </em>I go about it made a world of difference.</p>
<p>In the <em><strong><a title="Oregon's CDSMP workshops" href="http://public.health.oregon.gov/DiseasesConditions/ChronicDisease/LivingWell/Pages/participants.aspx" target="_blank">Living Well with Chronic Conditions workshops</a></strong></em> (Oregon’s name for the <span style="color: #0000ff;"><strong>Stanford University’s Chronic Disease Self-Management Program or CDSMP</strong></span>) available throughout Oregon, you can pick up some easy-to-do practices including breathing techniques, progressive relaxation, and guided imagery which all fall under a similar realm of wellness care.  They take some time to practice, but are so unbelievably easy and shown through research to be effective in improving health outcomes by connecting how our minds and bodies interact together.  With autoimmune conditions, that “auto” part is of particular importance to us and more studies are beginning to show that even though our immune system, as well as other automatic systems that keep our bodies functioning, acts without us having to think about it, we <em>can </em>influence them in ways to take better care of ourselves.</p>
<p>Practicing some mindfulness on positive activities that we do every day like preparing for bed (or simply scheduling a few minutes of taking some deep, focused cleansing breaths) can be the most loving thing you’ve done for yourself in quite awhile.  Try to bring more in-the-moment attention into your days, particularly as the holidays approach, and see if creating a mindful ritual can <em>treat</em> you to some healthy kindness.  You deserve it!</p>
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		<title>Newest MLWT Guest Writer, Eric Suarez, CPT offers support for our fibro community</title>
		<link>http://mylifeworkstoday.com/2011/10/25/newest-mlwt-guest-writer-eric-suarez-cpt-offers-support-for-our-fibro-community/</link>
		<comments>http://mylifeworkstoday.com/2011/10/25/newest-mlwt-guest-writer-eric-suarez-cpt-offers-support-for-our-fibro-community/#comments</comments>
		<pubDate>Wed, 26 Oct 2011 06:11:14 +0000</pubDate>
		<dc:creator>maria</dc:creator>
				<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Fibromyalgia]]></category>
		<category><![CDATA[Guest Blogger]]></category>
		<category><![CDATA[Lifestyle]]></category>
		<category><![CDATA[MLWT]]></category>
		<category><![CDATA[Oregon]]></category>
		<category><![CDATA[Pain management]]></category>
		<category><![CDATA[Resources]]></category>
		<category><![CDATA[Self-Care]]></category>
		<category><![CDATA[Sports & Fitness]]></category>
		<category><![CDATA[Washington]]></category>
		<category><![CDATA[Eric Suarez]]></category>
		<category><![CDATA[exercise and fitness]]></category>
		<category><![CDATA[Lupus]]></category>
		<category><![CDATA[wellness]]></category>

		<guid isPermaLink="false">http://mylifeworkstoday.com/?p=2898</guid>
		<description><![CDATA[I would like to introduce a new MLWT Guest writer, Eric Suarez, who is a fitness trainer and author of a new book focusing on living healthy with fibromyalgia.  As I have been working on building more resources for those of you here in thePacific Northwest facing this particular health challenge, I came across his [...]]]></description>
			<content:encoded><![CDATA[<p>I would like to introduce a new MLWT Guest writer, Eric Suarez, who is a fitness trainer and author of a new book focusing on living healthy with fibromyalgia.  As I have been working on building more resources for those of you here in thePacific Northwest facing this particular health challenge, I came across his website.  Eric has graciously agreed to write pieces for us that offer some basic principles and tips for gaining and maintaining movement for anyone living with a chronic condition.  Understanding, and honoring, what the fibro experience can involve through his work directly with patients and clients, as well as having faced his own health challenges with ulcerative colitis, I believe he will be a valuable resource for us all to consider as we try to apply our own self-care strategies.  He isn’t local, but has stepped up to the plate to give his support to us in creating the lives we want to live.  Thanks for joining us, Eric!</p>
<p>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~</p>
<p><img class="alignright" title="Eric Suarez" src="http://www.fibromyalgia-fitness.com/images/eric.jpg" alt="" width="201" height="202" /></p>
<p>It’s October here in New York and I can already feel the chill in my bones. Not a good feeling for anyone, but especially for fibromyalgia sufferers. The thing is &#8211; I know it’s going to be a long, cold, winter, but what am I supposed to do, curl up in the fetal position until May?</p>
<p>I can’t do that and neither should you. In the winter months it’s especially important for you to move.  You must keep that blood flowing and keep those muscles and joints loose. Now, exercise won’t be as easy or as comfortable as in the summer months, but it’s just as important to your fibromyalgia treatment. Your <strong><span style="color: #ff6600;">two biggest obstacles</span></strong> will be <em><span style="color: #ff6600;"><strong>motivation</strong></span></em> and the <em><strong><span style="color: #ff6600;">cold weather</span></strong></em>.</p>
<p>So here are <span style="color: #0000ff;"><strong>3 quick tips</strong></span> to put you on the fast track to exercise and health this winter, you can do it!</p>
<p>Who has the <span style="text-decoration: underline;"><strong><em>motivation</em></strong></span> to exercise in the cold?  No one. <span style="color: #0000ff;"><strong>The secret is to look past the winter</strong></span>. Don’t concentrate on the winter months.  Instead begin to prepare your body for the spring/summer that is coming. Where do you want to travel this coming summer? What activity have you wanted to do for a while?</p>
<p>Go to your calendar, mark the date, and exercise towards that goal.  As you exercise, <strong><span style="color: #0000ff;">picture that goal clearly in your head, focus on it, and believe it</span></strong>. Your mind will always look to accomplish what you truly believe in.</p>
<p>Your second road block will be the <span style="text-decoration: underline;"><em><strong>cold temperature</strong></em></span>. In the summer months I like to exercise in the early mornings. Winter &#8211; not so much. The winter mornings are always nice and chilly, not a good time to exercise. So instead I will get in my workouts after I have been up awhile and loosened up a bit. What usually helps? About <span style="color: #0000ff;"><strong>a cup or two of Green tea</strong></span>. Not only will it warm you up but the little caffeine it has will give you the extra boost you need to get moving.</p>
<p>No sunlight? Don’t forget your vitamin D. Vitamin D is bountiful in the summer months as we soak it up from the sun. In the winter it’s a little harder to feel the sun. A good vitamin D supplement should help keep your immune system nice and strong. Exercise will not only keep your body loose this winter, it will also strengthen your immune system.  Fibromyalgia plus a cold is never a good thing.</p>
<p>&nbsp;</p>
<blockquote><p><span style="color: #0000ff;"><em><strong><span style="color: #ff6600;">Bonus Tip</span>: It’s called the “Law of Expectation”.  It means focusing on expecting good things in your life. Forget about expecting more pain and fatigue. Make an effort to expect good health and a bright future.</strong></em></span></p></blockquote>
<p>&nbsp;</p>
<p>As always, remain positive this winter and know that summer is just around the corner, so start planning…</p>
<p>Eric Suarez, CPT.</p>
<p><a title="His website" href="http://www.Fibromyalgia-Fitness.com" target="_blank"><span style="color: #0000ff;">www.fibromyalgia-fitness.com</span></a></p>
<p><strong><span style="color: #0000ff;">~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~</span></strong></p>
<p><span style="color: #ff6600;"><strong>Eric Suarez</strong></span> is a Certified Fitness Trainer and the owner of Valiant Personal Training in New York. He is the founder <a href="http://www.fibromyalgia-fitness.com/">www.Fibromyalgia-Fitness.com</a> and the author of new book -<span style="color: #0000ff;"><strong><em>Fibromyalgia Fitness, 12 Weeks To A Healthier You!  </em></strong></span>He is offering <span style="color: #ff6600;"><strong><em>a discount on his book to MLWT members</em></strong></span> and I will be posting more information about those details here very soon.</p>
<p>Since 2008, Eric has been helping fibromyalgia sufferers gain control over their symptoms by using simple functional exercises and healthy eating.  You can contact Eric directly at <strong><a href="mailto:eric@fibromyalgia-fitness.com">eric@fibromyalgia-fitness.com</a> </strong> and follow him on Twitter at <span style="color: #0000ff;"><strong>@Fibro_Fitness</strong></span>.  Stop by, consider signing up for his e-newsletter and be sure to say hello.</p>
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		<title>Disability: The Chronic Illness version of the Fork in the Road</title>
		<link>http://mylifeworkstoday.com/2011/09/19/disability-the-chronic-illness-version-of-the-fork-in-the-road/</link>
		<comments>http://mylifeworkstoday.com/2011/09/19/disability-the-chronic-illness-version-of-the-fork-in-the-road/#comments</comments>
		<pubDate>Mon, 19 Sep 2011 21:25:44 +0000</pubDate>
		<dc:creator>maria</dc:creator>
				<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Disability resources]]></category>
		<category><![CDATA[Fibromyalgia]]></category>
		<category><![CDATA[Guest Blogger]]></category>
		<category><![CDATA[Local Resources]]></category>
		<category><![CDATA[Oregon]]></category>
		<category><![CDATA[Washington]]></category>
		<category><![CDATA[Cheryl Coon]]></category>
		<category><![CDATA[Disability]]></category>
		<category><![CDATA[Lupus]]></category>

		<guid isPermaLink="false">http://mylifeworkstoday.com/?p=2499</guid>
		<description><![CDATA[If you were unable to attend last Saturday’s presentation by MLWT Guest Writer Cheryl Coon on the nuts and bolts of disability insurance inOregon, it was a great success.  She not only offered us an overview of the step-by-step process, but she also spoke specifically about considering disability options for challenges faced with Fibromyalgia.  Namely, that [...]]]></description>
			<content:encoded><![CDATA[<p>If you were unable to attend last Saturday’s presentation by MLWT Guest Writer <span style="color: #ff6600;"><strong>Cheryl Coon</strong></span> on the nuts and bolts of disability insurance inOregon, it was a great success.  She not only offered us an overview of the step-by-step process, but she also spoke specifically about considering disability options for challenges faced with Fibromyalgia.  Namely, that fibromyalgia does not have a specific ‘listing’ and has unique challenges when applying that we need to be sure that our representatives recognize while working our case.  She opened things up for questions or concerns and it was greatly appreciated by all. Some audience participants offered us some food for thought on how their experiences went or were currently going, including some clients of Cheryl.  Good questions, good, clear information and an opportunity to explore what it all may mean now or maybe in the future for some of us.</p>
<p>There will be a video of the presentation available to watch, if you belong to the PDXFibro/CFS Ning community.  Cheryl also provides printable versions of her materials on her website, including the <strong><a title="Swanson Thomas &amp; Coon Disability brochure" href="http://www.stc-law.com/pdf/social-security-disability.pdf" target="_blank">brochure she handed out at the meeting</a></strong>, and welcomes any questions here on the blog or to her directly.</p>
<p>&nbsp;</p>
<p>There are two big concerns that sometimes become walls blocking us from considering applying for disability .  One worry is &#8220;<span style="color: #0000ff;"><strong>How much will it cost me?</strong></span>&#8221; and the other is &#8220;<strong><span style="color: #0000ff;">Who should I get to represent me?</span></strong>&#8220;  Sometimes, these two questions can play off of each other, with the question of cost determining our decision about representation.  Local attorney, <span style="color: #ff6600;"><strong>Cheryl Coon</strong></span>, offers us a quick summary targeting both of these questions.</p>
<p><strong> ~~~~~~~~~~~~~~~~~~~~~~~~~~</strong></p>
<p><span style="text-decoration: underline;"><strong><span style="color: #0000ff; text-decoration: underline;">How do Social Security Representatives (Attorneys and non-Attorneys) get Paid?</span></strong></span></p>
<p>When clients come to see me about their case, the first question is usually “Do I have a good case?”  The second question is “What will you charge to help me?”</p>
<p>The easiest question is, of course, the second one.  (Evaluating the strength of a case is a complex process that includes a claimant’s age, education, past work, and general credibility (which includes alcohol and drug use, criminal record).  Then there are the factors beyond the claimant himself – which judge is assigned to hear the case.)  Today’s column explores the myths about how representatives (reps), both attorney and non-attorney get paid.</p>
<p>&nbsp;</p>
<p><span style="color: #0000ff;"><strong>Myth #1:  Only some attorneys and non-attorney reps offer to represent you for free until or unless you win.</strong></span></p>
<p>Under the Social Security law and regulations, no-one can charge you for helping you with your case without first getting their fee approved by the Social Security Administration.</p>
<p>&nbsp;</p>
<p><span style="color: #0000ff;"><strong>Myth #2:  Even if I lose, my attorney/non-attorney rep can charge me a lot of money.</strong></span></p>
<p>What you pay depends on the agreement you made with your attorney/non-attorney rep.  Although it is widely believed that you can only be charged if you lose, in fact, neither the Social Security law nor the regulations say this.  As a practical matter, I do not know any attorneys who charge if they are unsuccessful in winning your case.  You can and will be asked to pay out-of-pocket expenses such as postage or the costs of a medical consultation, regardless of the outcome.</p>
<p>&nbsp;</p>
<p><span style="color: #0000ff;"><strong>Myth #3:  Attorneys and non-Attorney reps get paid 25% of back benefits.</strong></span></p>
<p>Attorneys and non-Attorney reps do get paid out of back benefits, but it’s the lesser of 25% or $6000.  The cap of $6000 always applies.  In a typical case, the fee is usually closer to $3000 or less.  In an SSI case, where the monthly amount is currently $674, a year of back benefits will result in a fee of $2000.</p>
<p>&nbsp;</p>
<p><strong><span style="color: #0000ff;">Myth #4:  Non-attorney reps charge less than Attorneys.</span></strong></p>
<p>The law allows both attorneys and non-attorneys to charge the same amount.</p>
<p>&nbsp;</p>
<p><span style="color: #0000ff;"><strong>Myth #5:  Anyone can be a non-attorney representative</strong>.</span></p>
<p>In order to insure the best possible representation, the Social Security Administration recently changed its rules for direct payment of non-attorney reps (a person can represent another without getting direct payment but it’s a powerful inducement to comply with the rules).</p>
<p>&nbsp;</p>
<p><span style="color: #ff6600;"><strong>The law requires that non-attorney reps must</strong></span>:</p>
<ul>
<li>possess a bachelor&#8217;s degree from an accredited institution or possess equivalent qualifications;</li>
<li>pass a written examination administered by the Social Security Administration, which tests knowledge of the relevant provisions of the Social Security Act and the most recent developments in agency and court decisions;</li>
<li>obtain professional liability insurance sufficient to protect claimants in case of malpractice;</li>
<li>pass a criminal background check; and</li>
<li>complete continuing education courses.   (<em>Effective August 29, 2011</em>)</li>
</ul>
<p>&nbsp;</p>
<p><span style="color: #0000ff;"><strong>Myth #6:  You don’t need to understand how to do a federal court appeal in order to represent a social security disability claimant.</strong></span></p>
<p>The Social Security disability process has multiple levels of administrative appeals, culminating in a hearing.  If you don’t win at hearing, all is not lost.  There is one more level of appeal, known as the Appeals Council.  After that, a claimant still has the option of going to federal district court to appeal.</p>
<p><span style="color: #ff6600;"><em><strong>Social security disability appeals to federal district court are common</strong></em>.</span>  Many claimants succeed here who did not get favorable results at hearing.  Only attorneys are allowed to handle federal district court appeals.</p>
<p>A successful federal district court appeal depends upon the record that was created during the other levels of appeal, including: evidence submitted, examination of the claimant, cross-examination of the medical and vocational experts, and briefs.  So, while you don’t have to understand how to do a federal court appeal, it helps to have a representative who does, because he or she will approach the hearing record with that in mind right from the beginning.  Moreover, many attorneys will not bring district court appeals for claimants whom they did not represent during the hearings process, so it can be hard to find an attorney at that stage of the process.</p>
<p>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~</p>
<p><span style="color: #ff6600;"><strong><em>Cheryl Coon</em></strong></span><em> exclusively focuses her law practice on social security disability at all stages of the process, representing clients from Eugene, Oregon to Vancouver, Washington. She can be reached at <strong><a href="mailto:ccoon@stc-law.com">ccoon@stc-law.com</a></strong>. Her law firm, Swanson Thomas and Coon, can be found at <strong><a href="http://www.stc-law.com/">www.stc-law.com</a></strong>.</em><em><strong>  <a title="Cheryl's Disability blog" href="http://www.stc-law.com/socialsecurity/" target="_blank">Cheryl&#8217;s blog</a> </strong>offers case studies called &#8220;Can This Case Be Won&#8221; and I encourage you to read more about how this challenging process evolves.</em></p>
<p><em><strong>Another resource</strong> Cheryl invites you to check into is the </em><strong><a title="Her website's link to the program" href="http://www.stc-law.com/ticket-to-work/ticket-to-work.html" target="_blank">Ticket To Work Program</a></strong><em> , </em><em>which works with the disability program incorporating employment opportunities without adversely affecting your disability rights.</em></p>
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		<title>Seeking the &#8220;Why&#8221; in Fibromyalgia</title>
		<link>http://mylifeworkstoday.com/2011/09/15/seeking-the-why-in-fibromyalgia/</link>
		<comments>http://mylifeworkstoday.com/2011/09/15/seeking-the-why-in-fibromyalgia/#comments</comments>
		<pubDate>Thu, 15 Sep 2011 16:27:01 +0000</pubDate>
		<dc:creator>maria</dc:creator>
				<category><![CDATA[Books]]></category>
		<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Events]]></category>
		<category><![CDATA[Fibromyalgia]]></category>
		<category><![CDATA[Guest Blogger]]></category>
		<category><![CDATA[MLWT]]></category>
		<category><![CDATA[Oregon]]></category>
		<category><![CDATA[Personal Stories]]></category>
		<category><![CDATA[Social Support]]></category>
		<category><![CDATA[Washington]]></category>
		<category><![CDATA[Lupus]]></category>
		<category><![CDATA[Sue Ingebretson]]></category>
		<category><![CDATA[wellness]]></category>

		<guid isPermaLink="false">http://mylifeworkstoday.com/?p=2473</guid>
		<description><![CDATA[In the past 15 years of my chronic illness expedition, I have met some amazing individuals living with Fibromyalgia, a chronic health challenge that causes persistent and inconsistent pain throughout a person’s body, while leaving their appearance looking quite “fine.”  Even though I live with and know more about lupus, fibro has shown to be [...]]]></description>
			<content:encoded><![CDATA[<p>In the past 15 years of my chronic illness expedition, I have met some amazing individuals living with Fibromyalgia, a chronic health challenge that causes persistent and inconsistent pain throughout a person’s body, while leaving their appearance looking quite “fine.”  Even though I live with and know more about lupus, fibro has shown to be a constant companion for many to face in addition to their lupus diagnosis.  Sometimes, their diagnosis begins with fibro or they discover a relative somewhere within their family tree who has lived with it for years without knowing what to call it (as it was with my own mother).  Whether the medical and research communities want to stand behind the connection or not, there are many of you who do.</p>
<p>One of the many things I’ve learned about the fibro community is that pain is a strong motivator.  With lupus, pain is sometimes present or may be more present in our days than we would like it to be, but not one of the key symptoms associated with our illness.  When someone lives with pain, it affects and changes us to seek out answers, information, resources, or alternatives at a level that we may not be naturally inclined to act.  As someone living with lupus and looking just fine, it is easy for me to decide not to talk about my health.  I can blend in without too much effort, keeping the internal chaos as invisible to myself as it is to the person standing in front of me.  However, I started out with a great deal of pain, before I knew that lupus was ravaging my kidneys, and I know that I showed my pain in the way I attempted to walk, reach, sit, smile&#8230;live.</p>
<p>I have been granted an opportunity to meet with many local people and have become part of the strong Fibro community here in the Portland Metro area.  If you are interested in meeting some of them, many are members of their Ning community that I have listed down in the right margin here under “MLWT Networks.”  I receive emails from locals living with fibro (as well as worldwide) on a regular basis, more so than from people living with lupus.  They speak about what they are looking for, what they are doing and how they are thriving in spite of their constant pain.  Many are open about asking for help, even if it is a difficult thing to accept at times.  They welcome visitors to their groups in order to ease the discomfort a new environment can create for many of us.  The emotional wall seems much more flexible for these individuals and, I suspect, their life with pain moves them to keep connected to something or someone with hopes to mute their body’s hurtful signals to any degree possible.</p>
<p>Although my mother lives with, what she has been told by her doctor, “secondary fibromyalgia”, I still don’t ‘get it’ and I know I truly won’t ever fully understand what she goes through.  I do, however, want to learn more (and hear more) about as many fibromyalgia experiences as possible, because I know I will be able to better appreciate the information I receive coming from the ‘trenches’ more than I will from a research article or medical/pharmaceutical presentation.  I want to be here for my mom in a way that will actually acknowledge her unique experience and offer her the support that she needs, when she needs it.</p>
<p>To honor those many people living with fibro that I have met through MLWT, I will be hosting two book discussions in a row that focus on living with Fibromyalgia.  The first book is <span style="color: #0000ff;"><strong>FibroWHYalgia</strong></span>, by Sue Ingebretson, and <span style="color: #ff6600;"><strong>our discussion on Shelfari.com will begin October 1st</strong></span>.  To kick things off, <em><span style="color: #ff0000;"><strong>Sue has offered a free, signed copy</strong></span></em> for the lucky winner.  Even if you don’t get around to picking up a copy of the book right now, you can still join in on the discussion and we encourage you to do so.  It’s a chance to have a conversation that is guided by the topics covered in the book and an opportunity to perhaps learn about additional resources that may be of help in your own fibro experience.</p>
<p><span style="color: #0000ff;"><strong>Here’s how you can get the <span style="color: #ff0000;">FREE </span>copy of Sue’s book for the discussion:</strong></span></p>
<ul>
<li>The contest will run from today <span style="color: #ff6600;"><strong>September 15th until 11:59 PM Pacific time, Friday, September 23rd</strong></span>.</li>
<li>The winner will be selected in a <span style="color: #ff6600;"><strong>random drawing on September 24th</strong></span>. I want to keep this give-a-way free of strings requiring you to do anything to win.  However, since this is for our MLWT Book Discussion group, <span style="text-decoration: underline;"><span style="color: #0000ff; text-decoration: underline;"><strong>you will need to register a free account with Shelfari.com</strong></span></span>.  It is a great place to meet others reading the books you are and MLWT isn’t the only group.  Authors are also beginning to sponsor their own discussions, so it is worth the effort and a great way to keep up during the winter reading months.</li>
<li>I would also like to add your email addresses to my <span style="color: #0000ff;"><strong>new seasonal enewsletters (The MLWT Muse)</strong></span> that highlight wellness updates and resources to know more about, both local and outside ofOregon.</li>
<li>I will contact the winner via email on September 24th, and they will have <span style="color: #ff6600;"><strong>48 hours to reply</strong></span> in order to claim their prize. (So be sure your email address is correct!) After 48 hours I will move on to another winner.</li>
</ul>
<p><span style="text-decoration: underline; color: #0000ff;"><em><strong>To enter this give-a-way:</strong></em></span></p>
<ol>
<li><span style="color: #000000;"><span style="color: #000000;">Sign up for the</span></span> <span style="color: #ff6600;"><strong>MLWT Mailing list</strong></span> (directly to your right on the MLWT website) and leave a comment below letting me know you’re signed up.  Then,</li>
<li>Sign up for the <span style="color: #ff6600;"><strong>MLWT Book Discussion Group</strong></span> on <strong><a title="Shelfari website" href="http://www.shelfari.com/groups/41918/about" target="_blank">Shelfari.com</a> .</strong></li>
<li><span style="color: #ff0000;"><strong>If you are already registered for either or both of these, just leave a note in the comments here to enter your name!</strong></span></li>
</ol>
<p>Once the winner is chosen and has claimed their prize, Sue herself will contact them by email with her congratulations and get their mailing address for the prize copy.  The winner should receive it in time before the MLWT discussion really picks up.</p>
<p><strong><em><span style="color: #ff6600;">Best wishes to you all for the win and I’m looking forward to the upcoming discussion</span></em></strong>!</p>
<p>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~</p>
<p>To learn more about <span style="color: #0000ff;"><strong>Sue</strong></span> and her book, you can find her on <strong><a title="Twitter registration page" href="http://twitter.com/" target="_blank">Twitter</a></strong> (<span style="color: #0000ff;"><strong>@SueInge</strong></span>), her <strong><a title="Facebook" href="http://www.facebook.com/FibroWHYalgia" target="_blank">Facebook fanpage</a></strong> , and her book’s website <span style="color: #0000ff;"><strong><a title="FibroWHYalgia website" href="http://www.fibrowhyalgia.com/" target="_blank">www.FibroWHYalgia.com</a></strong></span> .  She is also an <span style="color: #ff6600;"><strong>MLWT Guest writer</strong></span> and you can enter her name in the search field on my website to bring up posts that she has contributed so far.</p>
<p>&nbsp;</p>
<p>&nbsp;</p>
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		<title>Quick note about this Saturday’s Beaverton-area Fibro/CFS Support Group Meeting</title>
		<link>http://mylifeworkstoday.com/2011/08/18/quick-note-about-this-saturdays-beaverton-area-fibrocfs-support-group-meeting/</link>
		<comments>http://mylifeworkstoday.com/2011/08/18/quick-note-about-this-saturdays-beaverton-area-fibrocfs-support-group-meeting/#comments</comments>
		<pubDate>Thu, 18 Aug 2011 17:41:07 +0000</pubDate>
		<dc:creator>maria</dc:creator>
				<category><![CDATA[Autoimmune Diseases & Syndromes]]></category>
		<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Community]]></category>
		<category><![CDATA[Coping]]></category>
		<category><![CDATA[Education and Skill Building]]></category>
		<category><![CDATA[Fibromyalgia]]></category>
		<category><![CDATA[Guest Blogger]]></category>
		<category><![CDATA[Humor]]></category>
		<category><![CDATA[Local Resources]]></category>
		<category><![CDATA[Lupus]]></category>
		<category><![CDATA[Oregon]]></category>
		<category><![CDATA[Pain management]]></category>
		<category><![CDATA[Scleroderma]]></category>
		<category><![CDATA[Social Support]]></category>
		<category><![CDATA[Washington]]></category>
		<category><![CDATA[Andrea Crisp]]></category>
		<category><![CDATA[laughter yoga]]></category>
		<category><![CDATA[support groups]]></category>

		<guid isPermaLink="false">http://mylifeworkstoday.com/?p=2418</guid>
		<description><![CDATA[Positive Lifestyle Coach, MLWT Guest and overall great gal, Andréa Crisp, will be presenting on Laughter Yoga.  It will be a great opportunity to learn a little more about this wonderful breathing tool to use it when things get a little rocky in your day.  There are a lot of videos on the web that [...]]]></description>
			<content:encoded><![CDATA[<p>Positive Lifestyle Coach, MLWT Guest and overall great gal, <strong><a title="Andrea's website" href="http://www.andreacrisp.com/" target="_blank">Andréa Crisp</a></strong>, will be presenting on<span style="color: #ff6600;"><em><strong> Laughter Yoga</strong></em></span>.  It will be a great opportunity to learn a little more about this wonderful breathing tool to use it when things get a little rocky in your day.  There are a lot of videos on the web that show what classes are like, but Andréa delivers the basics with emphasis on gentleness and fun.  Every instructor (and class) is different, so stop by and learn about another tool to put in your wellness tool box&#8230;you can never have too many options.  I know that laughing is not something that we feel like doing when we hurt, but Laughter Yoga isn’t about goofing off and being silly.  The breathing activities are truly beneficial for our health and their value comes through in the way Andréa leads us through them.</p>
<p>The urgent note I want to mention is that, although the group has moved to the <strong><a title="Location" href="http://www.multnomahartscenter.org/contact-us/hours-and-directions/" target="_blank">Multnomah Arts Center</a> </strong>, which I’ve had posted on the site.  <strong>This meeting had to be changed back to the old stomping grounds at the <em><span style="color: #ff0000;">Beaverton Library on 12375 Southwest 5th Street</span></em> . </strong>Due to road construction and the Farmer&#8217;s Market, the time has also been changed to begin at 1:30 with Andrea coming on at 2pm.</p>
<p>I hope to see you there~ trust me when I say this is a fun way to spend the afternoon.</p>
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		<title>Something new from Cheryl Coon, Attorney and MLWT Guest writer</title>
		<link>http://mylifeworkstoday.com/2011/08/09/something-new-from-cheryl-coon-attorney-and-mlwt-guest-writer/</link>
		<comments>http://mylifeworkstoday.com/2011/08/09/something-new-from-cheryl-coon-attorney-and-mlwt-guest-writer/#comments</comments>
		<pubDate>Tue, 09 Aug 2011 20:43:33 +0000</pubDate>
		<dc:creator>maria</dc:creator>
				<category><![CDATA[Arthritis Information]]></category>
		<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Community]]></category>
		<category><![CDATA[Disability resources]]></category>
		<category><![CDATA[Fibromyalgia]]></category>
		<category><![CDATA[Guest Blogger]]></category>
		<category><![CDATA[Internet]]></category>
		<category><![CDATA[Local Resources]]></category>
		<category><![CDATA[Lupus]]></category>
		<category><![CDATA[Oregon]]></category>
		<category><![CDATA[Pain management]]></category>
		<category><![CDATA[Scleroderma]]></category>
		<category><![CDATA[Cheryl Coon]]></category>
		<category><![CDATA[Disability]]></category>
		<category><![CDATA[Washington]]></category>

		<guid isPermaLink="false">http://mylifeworkstoday.com/?p=2379</guid>
		<description><![CDATA[Hello again~ Have you ever wondered how a lawyer analyzes a social security disability case and figures out whether a case can be won ?  How do the facts in a particular case add up &#8212; or not &#8212; to a winning case?  I decided to create a column dedicated to sharing an inside look [...]]]></description>
			<content:encoded><![CDATA[<p><span style="color: #000000;">Hello again~</span></p>
<blockquote><p><span style="color: #0000ff;"><em><strong>Have you ever wondered how a lawyer analyzes a social security disability case and figures out whether a case can be won ?  How do the facts in a particular case add up &#8212; or not &#8212; to a winning case? </strong></em></span></p></blockquote>
<p>I decided to create a column dedicated to sharing an inside look at how a lawyer takes the facts of an individual case and works with them to shape a winning argument for disability benefits.  In my column, I draw on my own cases with names and other facts changed to protect privacy to help explain how it works.  I call my column &#8220;<span style="color: #ff6600;"><strong>Can This Case be Won?</strong></span>&#8221; because I believe that stories, especially those based on a true case, are the best way to help non-lawyers understand the legal process.  Let me know what you think!  And check it out at my <strong><a title="Oregon Social Security blog" href="http://www.oregonsocialsecurityblog.com/" target="_blank">social security disability blog</a></strong> .</p>
<p><span style="font-family: Arial;"><br />
</span></p>
<p>Warm regards,</p>
<p><em>Cheryl</em></p>
<p><span style="color: #0000ff;"><strong>~~~~~~~~~~~~~~~~~~~~~~~</strong></span></p>
<p><span style="color: #ff6600;"><strong><em>Cheryl Coon</em></strong></span><em> </em><em>exclusively focuses her law practice on social security disability at all stages of the process, representing clients from Eugene, Oregon to Vancouver, Washington. She can be reached at</em><em> </em><em><a href="mailto:ccoon@stc-law.com">ccoon@stc-law.com</a>. Her law firm, Swanson Thomas and Coon, can be found at</em><em> </em><em><a href="http://www.stc-law.com/">www.stc-law.com</a>.</em></p>
<p>&nbsp;</p>
<p>&nbsp;</p>
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		<title>Participants Needed for Study of Naturopathy for “Hard-to-Diagnose”</title>
		<link>http://mylifeworkstoday.com/2011/06/29/participants-needed-for-study-of-naturopathy-for-hard-to-diagnose/</link>
		<comments>http://mylifeworkstoday.com/2011/06/29/participants-needed-for-study-of-naturopathy-for-hard-to-diagnose/#comments</comments>
		<pubDate>Wed, 29 Jun 2011 23:19:46 +0000</pubDate>
		<dc:creator>maria</dc:creator>
				<category><![CDATA[Ankylosing Spondylitis]]></category>
		<category><![CDATA[Autoimmune Diseases & Syndromes]]></category>
		<category><![CDATA[Challenge and Opportunity]]></category>
		<category><![CDATA[Chinese Medicine/Acupuncture]]></category>
		<category><![CDATA[Chronic fatigue]]></category>
		<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Community]]></category>
		<category><![CDATA[Fibromyalgia]]></category>
		<category><![CDATA[Lupus]]></category>
		<category><![CDATA[Lyme Disease]]></category>
		<category><![CDATA[Oregon]]></category>
		<category><![CDATA[Personal Stories]]></category>
		<category><![CDATA[Research]]></category>
		<category><![CDATA[Scleroderma]]></category>

		<guid isPermaLink="false">http://mylifeworkstoday.com/?p=2223</guid>
		<description><![CDATA[If you have a multi-symptom, hard-to-diagnose or treat illness such as lupus, fibromyalgia, chronic fatigue, or multiple chemical sensitivities, please consider participating in an interview-based research study. Dr. Suzanne Morrissey, professor and medical anthropologist at Whitman College, would like to interview you about your experiences using naturopathic medicine for your illness(es). Interviews last 1 to [...]]]></description>
			<content:encoded><![CDATA[<p>If you have a multi-symptom, hard-to-diagnose or treat illness such as <span style="color: #ff6600;"><strong>lupus, fibromyalgia, chronic fatigue, or multiple chemical sensitivities</strong></span>, please consider participating in an interview-based research study. Dr. Suzanne Morrissey, professor and medical anthropologist at Whitman  College, would like to interview you about <span style="color: #0000ff;"><strong>your experiences using naturopathic medicine for your illness(es</strong></span>). Interviews last 1 to 1½ hours and are conducted at a place of your choosing for comfort and privacy. Please call her at <span style="color: #0000ff;"><strong>509-301-0229 </strong></span>or email at <strong><a href="mailto:morrisse@whitman.edu"><span style="color: #0000ff;">morrisse@whitman.edu</span></a>. </strong></p>
<p><span style="color: #ff6600;"><em><strong>Another option</strong></em></span> is to participate in a <span style="color: #0000ff;"><strong>Portland-area focus group either this week or early next week</strong></span>~ they will only be in town for these interviews for a few more days.  Remember that the focus is on using naturopathic treatments that you may have included within your regular conventional treatment, such as acupuncture and Chinese medicine. I am coordinating the local focus group for them, so please call me at <span style="color: #0000ff;"><strong>503-616-4856 </strong></span>or email me at <strong><a href="mailto:maria@mylifeworkstoday.com"><span style="color: #0000ff;">maria@mylifeworkstoday.com</span></a> </strong>to register asap.</p>
<p><span style="font-family: Times New Roman; font-size: small;"> </span></p>
<p><span style="color: #ff6600;"><em><strong>This is a wonderful opportunity to help bring awareness to our medical community that thinking outside the box offers more options for us in taking care of ourselves.</strong></em></span></p>
<p><span style="color: #ff0000;"><strong><span style="font-family: Times New Roman; font-size: small;"> ******Update:  We have scheduled a date and time for this focus group~<span style="color: #0000ff;"> Thursday, July 7th at Beaverton Library.  The time frame is from 1-3pm, but there is opportunity to still be interviewed until July 9th.  Refreshments and a Starbucks gifit card will be offered for focus group participants.  We have a couple of spots left~it&#8217;s simply you telling the researchers about your use of naturopathic treatments and what part they&#8217;ve played in your wellness.</span></span></strong></span></p>
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