Category Archives: Personal Stories
This month in the MLWT Shelfari.com group , and continuing through March, we are discussing the book Unexpected Blessings: Stories of Hope and Healing (Penguin Group, 2009) written by Roxanne B......
I’ve found that my relationship to illness has become more of one that requires me to constantly acknowledge a relationship with illness.
Realistically speaking, the days of being able to keep ......
One would think that living with challenged kidney function, I would probably be swilling fluids all day long in an effort to make sure they keep working. In actuality, though, I tend to walk a......
An announcement from our local Scleroderma Chapter:
Have You Experienced a Lifetime Cap on Your Health Insurance?
The Scleroderma Foundation is interested in speaking with scleroderma patients w......
2009/11/05
Announcements, Books, Chronic Illness, Communication, Coping, Diagnosis, Education and Skill Building, Events, Local Resources, Lupus, MLWT, Oregon, Personal Stories, Self-Care, Social Support, Strategies, Treatment Approaches and Perspectives, Washington
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“My life has a great set of characters; I just haven’t figured out the plot.”
~Ashleigh Brilli......
2009/09/16
Advocacy, Challenge and Opportunity, Chronic Illness, Coping, Events, Internet, Lupus, MLWT, Oregon, Personal Stories, Social Support, Washington
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With this week being National Invisible Chronic Illness Awareness Week, there have been so many places to go and learn so much. Not just about living with a chronic illness, but about living&#......
2009/09/14
Advocacy, Announcements, Chronic Illness, Communication, Coping, Diagnosis, Events, Lupus, MLWT, Oregon, Personal Stories, Resources, Social Support, Treatment Approaches and Perspectives, Washington
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Here we go!
Monday, September 14th is the beginning of National Invisible Chronic Illness Awareness Week 2009 and there will a lot of great people out there offering a great deal of informatio......
2009/08/10
Challenge and Opportunity, Chronic Illness, Communication, Education and Skill Building, Lupus, Oregon, Personal Stories, Relationship-focused, Social Support, Stress Mgmt, Travel, Washington
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“Failure To Communicate“ – spoken by “The Captain“, the domineering prison warden played by Strother Martin in the 1967 movie Cool Hand Luke.
During my visit to Ge......
2009/07/07
Announcements, Challenge and Opportunity, Chronic Illness, Coping, Lupus, Oregon, Personal Stories, Stress Mgmt, Targets, Travel, Washington
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This past weekend, we celebrated our country’s independence here in the US. In the midst of my celebrating, I began my preparations to go on vacation with my family and really struggled t......
2009/06/23
Announcements, Behaviors and Patterns, Books, Chronic Illness, Coping, Diagnosis, Education and Skill Building, Events, Local Resources, Lupus, MLWT, Oregon, Personal Stories, Self-Care, Social Support, Stress Mgmt, Treatment Approaches and Perspectives, Washington
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When facing my lupus diagnosis, I sought out many books covering medical terms, confusing symptoms, current and potential treatment options – all to quench my thirst for conque......
