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Category Archives: Personal Stories

Job Opening~ Full-Time health manager with strong experience…wait, that’s me!

2012/02/02 Autoimmune Diseases & Syndromes, Chronic Illness, Education and Skill Building, Personal Stories, Resources, Self-Care, Strategies No comments
Generally, I avoid using marketing materials to describe what I “do.”  It feels to me like using brochures or shoving business cards down people’s throats somehow adds a ‘snake oil’ component th......

2012: The Year of ‘There and back again’

2012/01/02 Chronic Illness, Coping, Lupus, Personal Stories, Self-Care, Treatment Approaches and Perspectives No comments
I always look forward to the New Year, full of potential and new experiences.  I no longer make resolutions, only because they come with them old pressures and negative mental tapes of past fail......

How do I see my Illness?

2011/12/21 Ankylosing Spondylitis, Arthritis Information, Autoimmune Diseases & Syndromes, Chronic Illness, Creativity, Fibromyalgia, Health, Holidays & Socials, Internet, Lupus, MLWT, Oregon, Pain management, Personal Stories, Scleroderma, Self-Care, Social Support, Stress Mgmt, Vancouver No comments
I missed the deadline for the PFAM this month, but Leslie has graciously allowed us to submit late and here is mine. I offer both in-person and online Discovery Sessions that focus on wellness –......

Seeking the “Why” in Fibromyalgia

2011/09/15 Books, Chronic Illness, Events, Fibromyalgia, Guest Blogger, MLWT, Oregon, Personal Stories, Social Support, Washington 4 comments
In the past 15 years of my chronic illness expedition, I have met some amazing individuals living with Fibromyalgia, a chronic health challenge that causes persistent and inconsistent pain throu......

Introducing a new network with a youthful kick

2011/07/16 Chronic Illness, Communication, Coping, Lifestyle, Networking, Oregon, Personal Stories, Resources, Washington No comments
I am always on the lookout for new options for the younger set living with chronic illnesses.  So much of the information out there on the internet is geared towards assuming people living with ......

Participants Needed for Study of Naturopathy for “Hard-to-Diagnose”

2011/06/29 Ankylosing Spondylitis, Autoimmune Diseases & Syndromes, Challenge and Opportunity, Chinese Medicine/Acupuncture, Chronic fatigue, Chronic Illness, Community, Fibromyalgia, Lupus, Lyme Disease, Oregon, Personal Stories, Research, Scleroderma No comments
If you have a multi-symptom, hard-to-diagnose or treat illness such as lupus, fibromyalgia, chronic fatigue, or multiple chemical sensitivities, please consider participating in an interview-bas......

Embracing living on the edge~ both in health and humor

2011/05/30 Books, Chronic Illness, Coping, Humor, Lupus, Oregon, Personal Stories, Problem-focused, Self-Care, Social Support, Washington One comment
“You grow up the day you have your first real laugh at yourself.” – Ethel Barrymore   In April, the MLWT book discussion group on Shelfari.com hosted Carla Ulbrich’s  book  How Can You NOT Laugh......

Making Note of Lyme Disease Awareness this May

2011/05/27 Autoimmune Diseases & Syndromes, Diagnosis, Guest Blogger, Health, Lyme Disease, Medical Support, Oregon, Personal Stories, Self-Care, Washington No comments
As we come to a close this May, I wanted to make special mention of a disease that is often misunderstood and lumped in with lupus in the diagnostic stages.  I was initially told I had Lyme when......

Summertime, Summertime, uh, oh, Summertime ♫

2011/05/25 Advocacy, Announcements, Challenge and Opportunity, Events, Lupus, MLWT, Oregon, Personal Stories, Research, Self-Care, Travel, Washington No comments
Today we are hosting Patients For A Moment (PFAM) and the theme was to divulge the wishes, dreams, goals and plans for the summer months ahead.  I’m noticing a slow-down in PFAM participation an......

PFAM is here for May 25th!

2011/05/19 Chronic Illness, Coping, Events, Lifestyle, Lupus, Oregon, Outdoor Fun, Personal Stories, Self-Care, Social Support, Washington One comment
Okay, I am amazed that we are already in mid-May.  Thanks to Leslie at  Getting Closer To Myself   for reminding me to get going on calls for submissions.  I will be hosting the next Patients F......

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