Category Archives: Coping

The Sound of Silence

Darese (on right) and I, PNW Chapter LFA Portland Lupus Walk 2008 Sometimes, many months or years pass before I get around to checking in on some of my friends. One friend, in particular, would......

Introducing a new network with a youthful kick

I am always on the lookout for new options for the younger set living with chronic illnesses.  So much of the information out there on the internet is geared towards assuming people living with ......

Participants Needed for Study of Naturopathy for “Hard-to-Diagnose”

If you have a multi-symptom, hard-to-diagnose or treat illness such as lupus, fibromyalgia, chronic fatigue, or multiple chemical sensitivities, please consider participating in an interview-bas......

There’s No Shame in Social Security Disability Benefits~ Meet our new MLWT Guest Cheryl Coon

There’s a popular and ugly misconception that folks who have been found disabled under a Social Security disability benefits program are: (a) elderly (b) undeserving (c) disabled for life; and/......

Embracing living on the edge~ both in health and humor

“You grow up the day you have your first real laugh at yourself.” – Ethel Barrymore   In April, the MLWT book discussion group on Shelfari.com hosted Carla Ulbrich’s  book  How Can You NOT Laugh......

Making Note of Lyme Disease Awareness this May

As we come to a close this May, I wanted to make special mention of a disease that is often misunderstood and lumped in with lupus in the diagnostic stages.  I was initially told I had Lyme when......

Summertime, Summertime, uh, oh, Summertime ♫

Today we are hosting Patients For A Moment (PFAM) and the theme was to divulge the wishes, dreams, goals and plans for the summer months ahead.  I’m noticing a slow-down in PFAM participation an......

PFAM is here for May 25th!

Okay, I am amazed that we are already in mid-May.  Thanks to Leslie at  Getting Closer To Myself   for reminding me to get going on calls for submissions.  I will be hosting the next Patients F......

It is World Lupus Day – got your armor on?

  If you are living with lupus, or know someone who is, you will undoubtedly come across references to it live or via internet.  Over the last three years of MLWT, I have watched the presence of......

May 7th~ World Ankylosing Spondylitis Awareness Day

I have had the pleasure of meeting and collaborating with some amazing people, including the crew at the Spondylitis Association of America. Although there isn’t an official chapter of the Spon......

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