Category Archives: Communication
2012/01/19
Autoimmune Diseases & Syndromes, Books, Chronic Illness, Communication, Community, Coping, Fibromyalgia, Lupus, Networking, Resources, Social Support, Stress Mgmt
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In the Celebrations edition of the MLWT enewsletter, I introduced a new column “Community Sharing.” I will be announcing three topics that come into my email inbox on a regular basis and I am a......
I am always on the lookout for new options for the younger set living with chronic illnesses. So much of the information out there on the internet is geared towards assuming people living with ......
2011/05/01
Advocacy, Announcements, Autoimmune Diseases & Syndromes, Chronic Illness, Communication, Education and Skill Building, Events, Fibromyalgia, Lupus, MLWT, Oregon, Resources, Social Support, Treatment Approaches and Perspectives, Washington
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Here we are again~ National Lupus Awareness Month. International Lupus Awareness Day is May 10th. In Oregon, SB348 (Senate Bill 348 designates May of each year as Lupus Awareness Month and ma......
2010/11/06
Autoimmune Diseases & Syndromes, Chronic Illness, Communication, Events, Humor, Internet, Medical Support, MLWT, Oregon, Portland Metro, Social Support, Treatment Approaches and Perspectives, Washington
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Aviva, who authors the blog Sick Momma, is hosting PFAM (Patients For A Moment) Blog Carnival this coming Wednesday, November 10th. Her theme was to have people contribute their experiences, c......
I have been followed around by lupus for over a decade now, but there are still times when I actually expect to be able to fly solo. In comparison to many people living with this disease, I am ......
2010/08/23
Autoimmune Diseases & Syndromes, Challenge and Opportunity, Chronic Illness, Communication, Coping, Identity, Lupus, Oregon, Relationship-focused, Social Support, Treatment Approaches and Perspectives, Washington
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“What advice would you give, or what would you want non-chronically ill people to know about your illness and your life?”
This question brought up something I hadn’t thought about in years. Alt......
2009/11/07
Books, Challenge and Opportunity, Chronic Illness, Communication, Coping, Events, Lupus, Networking, Oregon, Self-Care, Social Support, Treatment Approaches and Perspectives, Washington
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In the last post , I spoke of how many of us constantly seek out information regarding our chronic illness believing that the more we know, the better we will be in managing our illnesses. Alth......
2009/11/05
Announcements, Books, Chronic Illness, Communication, Coping, Diagnosis, Education and Skill Building, Events, Local Resources, Lupus, MLWT, Oregon, Personal Stories, Self-Care, Social Support, Strategies, Treatment Approaches and Perspectives, Washington
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“My life has a great set of characters; I just haven’t figured out the plot.”
~Ashleigh Brilli......
2009/09/14
Advocacy, Announcements, Chronic Illness, Communication, Coping, Diagnosis, Events, Lupus, MLWT, Oregon, Personal Stories, Resources, Social Support, Treatment Approaches and Perspectives, Washington
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Here we go!
Monday, September 14th is the beginning of National Invisible Chronic Illness Awareness Week 2009 and there will a lot of great people out there offering a great deal of informatio......
2009/09/04
Announcements, Challenge and Opportunity, Chronic Illness, Communication, Community, Creativity, Fibromyalgia, Local Resources, Lupus, MLWT, Oregon, Pilots and Programs, Portland Metro, Relationship-focused
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My Life Works Today! has been invited to design a curriculum using an internationally-recognized communications system to use for managing chronic illness. We are looking for a few participants ......
