Category Archives: Advocacy

No matter where I go, there you are~

I have been followed around by lupus for over a decade now, but there are still times when I actually expect to be able to fly solo.  In comparison to many people living with this disease, I am ......

Putting it out there

Today begins National Invisible Chronic Illness Awareness Week 2010.  For the entire week, I will be posting mini-posts including photos that bring a little more visibility to how I view living ......

Incognito No More

For my contributions for Invisible Illness Awareness Week  this year, Leslie  at Getting Closer To Myself and I are collaborating on a fun little project with our goal being to make the invisibl......

Birds of a feather~Do we flock together?

Ah, Fall.  My favorite time of year.  One would think that, living in Oregon,  having a respite from gray, rainy weather would be something I would want to hold onto as long as possible.  The t......

Lupus makes the TV lineup tomorrow

Have any of you noticed the increase in lupus talk happening in the media?  Lady Gaga, Snoop Dogg’s daughter, and John Stewart comparing lupus to the FOX News Network?  You don’t only have to s......

Knowing Where Illness Stops and Love Begins

I’m working down my catch up list of posts and have reached this trailer for a new movie that addresses living with illness (lupus) and learning to love right along with it. Check out Love......

A Penny For Your Thoughts

On Tuesday night, July 6th, I watched the PBS NewsHour (on OPB Channel 10 ) segment (reported by correspondent Betty Ann Bowser and funded by  Robert Wood Johnson   Foundation ) about the new he......

Scleroderma Foundation OR Chapter on AM Northwest This Thursday

  I received a note from the Oregon Chapter of the Scleroderma Foundation that they will once again be on our own KATU Channel 2 AM Northwest morning show!  This Thursday,July 1st, AM Northwest ......

People First!

Today, BloggersUnite is hosting an online event entitled People First: Empowering People With Disabilities . I’ve been having unusually prominent symptoms from my lupus.  I always anticipate a ......

Local Arthritis Events to Join in on!

I want to mention a couple of great things going on through the PNW Chapter of the Arthritis Foundation and our own local branch here in Oregon~ There will be a free Public Education Seminar off......

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