Category Archives: Advocacy
We live next to a water way and have more varieties of fowl than you would expect to be here in the suburbs. With the mild temps this winter and heading into spring, the size of our backyard f......
An announcement from our local Scleroderma Chapter:
Have You Experienced a Lifetime Cap on Your Health Insurance?
The Scleroderma Foundation is interested in speaking with scleroderma patients w......
2009/12/27
Advocacy, Autoimmune Diseases & Syndromes, Education and Skill Building, Lifestyle, Local Resources, Lupus, MLWT, Oregon, Resources, Self-Care, Social Support, Targets, Washington
2 comments
I’ve been off the radar for too long here and plan on getting back into writing in January. It’s tough to keep putting up posts when there are so many amazing people to be connecting with perso......
2009/10/12
Advocacy, Announcements, Autoimmune Diseases & Syndromes, Chronic Illness, Coping, Events, Local Resources, Oregon, Resources, Vancouver, Washington, Work and Career
No comments
Nothing brings home the challenges of stiff, achy joints and limited mobility quite like the dampness of a good Oregon winter. We’ve been fortunate here so far in not stepping into that season......
2009/10/06
Advocacy, Books, Community, Events, Local Resources, Lupus, Outdoor Fun, Portland Metro, Resources, Social Support, Sports & Fitness, Washington, Western
One comment
A quick note for all of you who will be in the Seattle area on October 17th :
The LFA Pacific NW Chapter will be hosting their annual Mad Hatter Walk N Roll for Lupus event on that day at Magnus......
2009/09/16
Advocacy, Challenge and Opportunity, Chronic Illness, Coping, Events, Internet, Lupus, MLWT, Oregon, Personal Stories, Social Support, Washington
No comments
With this week being National Invisible Chronic Illness Awareness Week, there have been so many places to go and learn so much. Not just about living with a chronic illness, but about living&#......
2009/09/14
Advocacy, Announcements, Chronic Illness, Communication, Coping, Diagnosis, Events, Lupus, MLWT, Oregon, Personal Stories, Resources, Social Support, Treatment Approaches and Perspectives, Washington
No comments
Here we go!
Monday, September 14th is the beginning of National Invisible Chronic Illness Awareness Week 2009 and there will a lot of great people out there offering a great deal of informatio......
2009/08/28
Advocacy, Announcements, Autoimmune Diseases & Syndromes, Coping, Education and Skill Building, Local Resources, Lupus, MLWT, Oregon, Outdoor Fun, Research, Resources, Social Support, Targets, Washington
No comments
So you are probably groaning right now and understandably so – lame title, I know. However, it fits what has been going on here and I will explain a little about the silence in my postin......
2009/07/06
Advocacy, Announcements, Challenge and Opportunity, Community, Eastern, Events, Guest Blogger, Local Resources, Lupus, MLWT, Oregon, Portland Metro, Social Support, Washington, Western
No comments
Hi Members and Friends,
I am Kathy Casey, the Executive Director of Lupus Foundation of America, Pacific Northwest Chapter. I will be celebrating 8 years here this month and have to say that I......
2009/06/04
Advocacy, Autoimmune Diseases & Syndromes, Chronic Illness, Coping, Events, Fibromyalgia, Guest Blogger, Lupus, MLWT, Oregon, Personal Stories, Resources, Social Support, Strategies, Treatment Approaches and Perspectives, Washington, Work and Career
No comments
I want to send out a warm-hearted “Thank You! “ to all of the wonderful people who contributed to our first annual “Our Voices for Lupus Awareness” guest blogging event ......
