HOME

Category Archives: Advocacy

Arthritis Road Show Free Education Presentations

2011/09/07 Advocacy, Arthritis Information, Community, Events, Local Resources, Oregon, Oregon Coast No comments
This traveling community presentation offering will be available beginning this Saturday and provide speakers, e-advocacy opportunities and more information about theOregon’s Arthritis Foundatio......

Summertime, Summertime, uh, oh, Summertime ♫

2011/05/25 Advocacy, Announcements, Challenge and Opportunity, Events, Lupus, MLWT, Oregon, Personal Stories, Research, Self-Care, Travel, Washington No comments
Today we are hosting Patients For A Moment (PFAM) and the theme was to divulge the wishes, dreams, goals and plans for the summer months ahead.  I’m noticing a slow-down in PFAM participation an......

Today is National Fibromyalgia Awareness Day

2011/05/12 Advocacy, Behaviors and Patterns, Books, Events, Fibromyalgia, Guest Blogger, Oregon, Pain management, Resources, Self-Care, Strategies, Washington No comments
I am pleased to introduce author and pain archeologist, Sue Ingebretson, as our guest for today.  You may already know her from her website Rebuilding Wellness and/or from her book, FibroWHYalg......

It is World Lupus Day – got your armor on?

2011/05/10 Advocacy, Chronic Illness, Coping, Events, Internet, Lupus, Oregon, Personal Stories, Self-Care, Social Support, Washington No comments
  If you are living with lupus, or know someone who is, you will undoubtedly come across references to it live or via internet.  Over the last three years of MLWT, I have watched the presence of......

May 7th~ World Ankylosing Spondylitis Awareness Day

2011/05/07 Advocacy, Ankylosing Spondylitis, Arthritis Information, Coping, Education and Skill Building, Events, Internet, Oregon, Pain management, Personal Stories, Resources, Social Support, Vancouver, Washington No comments
I have had the pleasure of meeting and collaborating with some amazing people, including the crew at the Spondylitis Association of America. Although there isn’t an official chapter of the Spon......

May and Lupus back in the spotlight

2011/05/01 Advocacy, Announcements, Autoimmune Diseases & Syndromes, Chronic Illness, Communication, Education and Skill Building, Events, Fibromyalgia, Lupus, MLWT, Oregon, Resources, Social Support, Treatment Approaches and Perspectives, Washington No comments
Here we are again~ National Lupus Awareness Month.  International Lupus Awareness Day is May 10th.  In Oregon, SB348 (Senate Bill 348 designates May of each year as Lupus Awareness Month and ma......

Sound the trumpets, but heed the call

2011/03/12 Advocacy, Health, Lupus, Oregon, Treatment Approaches and Perspectives, Treatments and Drug Trials, Washington One comment
This was a big week for me and I intend to write about all that is going on in the next few days.  I want to begin with one of those “big” items, though, that has caused some mixed feelings and ......

New MLWT Partnership: Meet the APSFA

2011/01/10 Advocacy, Autoimmune Diseases & Syndromes, Diagnosis, Guest Blogger, Internet, Labs & Testing, Medical Support, Oregon, Resources, Washington No comments
I would like to welcome Tina Pohlman, as our newest MLWT Guest contributor.  She is the President, Co-Founder, Executive Director of the APS Foundation of America, Inc. .  She is also an APS an......

No matter where I go, there you are~

2010/09/14 Advocacy, Behaviors and Patterns, Chronic Illness, Communication, Events, Identity, Lupus, Oregon, Washington No comments
I have been followed around by lupus for over a decade now, but there are still times when I actually expect to be able to fly solo.  In comparison to many people living with this disease, I am ......

Putting it out there

2010/09/12 Advocacy, Chronic Illness, Events, MLWT, Oregon, Social Support, Washington One comment
Today begins National Invisible Chronic Illness Awareness Week 2010.  For the entire week, I will be posting mini-posts including photos that bring a little more visibility to how I view living ......

Join the MLWT Mailing List