I’m working down my catch up list of posts and have reached this trailer for a new movie that addresses living with illness (lupus) and learning to love right along with it.
Check out Love Simple
Oregon Support & Meet-up Group Announcements
Portland/Beaverton area Fibro/CFS/ME group~ next meeting is Saturday, May 19th from 1-4:00 PM. As recognition of May being National Fibro Awareness Month, there will be a special "self-care" retreat offered at this month's meeting time. It will be held at the Frida Center in SW Portland and open to all. Also consider joining in on their webinars, too.~
Bend's Central Oregon Scleroderma Support Group next meeting is set for May 10th, 5:30pm upstairs in the Physician's Lounge. Sue Gutz of Actelion Pharmaceuticals will be presenting.
Portland area group's first 2012 meeting is scheduled for May 12th
and will be featuring guest cardiologist Dr. John H. Greves of the Vancouver Clinic.
Health Tips & Tools
LFA's interactive tool~ The Impact of Lupus on the Body
Research
Fibromyalgia and Family Impact Study~ this information is from the National Fibromyalgia & Chronic Pain Association website and conducted through University of Pittsburgh. Approximately 25 minute online survey to better understand the impact fibro has on personal relationships. Click the image that will take you directly to the survey or learn more by visiting the NFMCPA website.
National Fibromyalgia and Chronic Pain Association (NFMCPA) announces a sponsor-promoted research study for teens living with fibro. Learn more on their website or on the study website here
Oregon SLE Study recruiting in Portland and Corvallis (Study #1 listed)
Online research opportunity to consider exploring the symptom experience of lupus. Graduate student project with contact information available for any of your questions.
A Survey Through AARDA call for participants!
How Do You Make Decisions About New Medications?
SLE Sister Study of biological sisters with and without lupus enrolling now!
MLWT is planning a community-based participatory research project to be held here in Oregon regarding living with invisible chronic health challenges. Be sure to check the Calendar page for updates on the plans, recruitment, and schedules coming this month during this active advocacy month.
National Fibromyalgia and Chronic Pain Association (NFMCPA) announces a sponsor-promoted research study for teens living with fibro. Learn more on their website or on the study website here
Oregon SLE Study recruiting in Portland and Corvallis (Study #1 listed)
Online research opportunity to consider exploring the symptom experience of lupus. Graduate student project with contact information available for any of your questions.
A Survey Through AARDA call for participants!
How Do You Make Decisions About New Medications?
SLE Sister Study of biological sisters with and without lupus enrolling now!
MLWT is planning a community-based participatory research project to be held here in Oregon regarding living with invisible chronic health challenges. Be sure to check the Calendar page for updates on the plans, recruitment, and schedules coming this month during this active advocacy month.
Web Resources to Check Out
Show us Your Hands~ introducing the world to Autoimmune Arthritis
Learn more about this project bringing pain into the light~
Arthritis Internet Registry is open~ learn more about this valuable opportunity
Be sure to check out and contribute to their Story Bank, too!
Learn more about this project bringing pain into the light~
Arthritis Internet Registry is open~ learn more about this valuable opportunity
Be sure to check out and contribute to their Story Bank, too!
New Health Information Resource for Oregonians~
New 2011 information about the Federal Pre-Existing Condition Insurance Plan~
MLWT Networks
Media Connections
